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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 13 August 2011

Slept like a baby


Well all that walking last night from the coach to the race course and back again, certainly paid off as I slept like a log. So this is what it's like to go off to sleep and wake up in the morning when it's time to get up. I'm liking it!
I was very proud of myself doing all that walking yesterday. Ok I had the help of my wheelchair and I did work up a bit of a sweat, but isn't that what they say you should do when exercising, although probably the trembling bit shouldn't be included!

Anyway, I treated myself to a leisurely morning and chatted on the phone to various girlfriends, catching up on all the gossip. It's weird, but I actually have felt quite strong these last couple of weeks since the Papworth visit and felt very positive. Maybe after all I will get my life as I knew it back again, but this time even better.

In between making meals for my mother and making sure she was taking her medication and drinking enough, I went to see Irene and Ian for the afternoon over in Colchester.
We sat in her back garden and you could be forgiven for thinking summer had actually decided to pay us a visit, as it was quite glorious sitting out there.
Once again I felt like I used to be, sitting there chatting and sipping ice cold soft drinks before having something to eat. We talked about holidays, as they are well travelled and then I was back to earth, as this year has been a non event for holidays for me.
I suppose because I didn't know what I had in store for me health wise and not being fit enough to fly anyway, this summer has been a bit of a disappointment. Especially as the weather looked so promising at Easter and then turned into a damp squid. If it had been better weather, I wouldn't have minded so much as we could have gone to the local seasides and at least had a swim and sunbath there.
However much I look forward to my birthday on the 21st of this month, I can't help but think my birthday heralds the end of the summer, especially as all the fields are been harvested now.

Still I have lots to look forward to and who knows I could be lucky and get a match quite quickly.
I did however get my appointment for the barium swallow examination today. It's on the 31st of August, I'm glad as I was beginning to worry that it had all gone too quiet again on the hospital front.
I know Papworth want these tests done toot sweet, but I did wonder if I have to have these done before I can go to Papworth for my three day stay? I don't think so and I hope not, as I'm still waiting for the other appointment.
Ah well, everything comes to those that wait and besides, mother looks a bit better again, so thank my blessing for what I have now. I'm a lot luckier than some.

Lots of love Debbie x

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