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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 10 August 2011

When the music stops... all change


You'll be pleased to know that I didn't self combust last night, although it was touch and go and much shouting at the TV ensued.

I didn't sleep very well either for worrying about mother, so I did get a telling off for not sleeping from Hannah my young physio. Hannah came out and gave me an extra session of pummelling, as we were all a bit concerned yesterday at clinic that I could catch mother's infection by being the chief person looking after her.
I didn't need to be told, but if I don't sleep, then my immunity levels plummet even further down and I will have nothing left in me to fight any infection. But if you can't sleep, then there's not a lot you can do about it as the more you worry, the more sleep eludes you.
I have to be honest here, I didn't feel too wonderful last night when I went to bed either. I was feeling very hot on my face and was coughing more than normal after having a session of physio and then the small hours ticked by with no sign of any sleep coming my way. Whether it was psychosomatic or for real I don't know.
Hopefully today's extra session might have seen what ever it was off.

Mother still looked awful this morning and didn't want to leave her bed at all. I made her promise me that she would be up and sitting in th earmchair after I came back from having my physio done and she was, plus looking a lot brighter.
The lady came from the home care agency to assess mother for help getting up two mornings a week and then if she approves, we can move on to more days.
Oh please let her like them!
Just having that extra help will take off so many worries from me, just leaving her three mornings to fend for herself, as my sister is an early riser and always pops in early two mornings a week.
Mother seemed to brighten up as the day went on after that, especially after she said,
' I won't have to go in a home straight away now will I.'
I smiled and told her 'no, only when she is ready to do so,' and the change in her was amazing. If she wants to go in a home then all well and good, but it must be her discussion. And everything could change 100% tomorrow, as mother takes the woman's right to be fickle to the very limit and changes her mind like the wind.

I feel a lot happier too now.

Lots of love Debbie x

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