Not a sausage, diddly squat, zilch or bugger all...I have heard nothing...yet again. Another Friday has passed me by without so much of a hello from the hospital.
Blimey O'Reilly, if the waiting to hear that you are now active is this nerve racking, how will my nerves stand up when I am active and waiting for a donor?
It keeps flashing up in my head, that the head consultant was going to make me wait until Dec and then be reassessed, so maybe he has changed his mind and I've got to wait a bit longer?
But surely they would have called me and told me if there had been a change of plans?
The trouble with me, is that I hang on to every word people say to me and if they so much as pause when saying something, then I analyze it within an inch of it's life.
Still I didn't sit by the phone all day waiting, but I went off to a wedding.
Although leaving my mobile phone in the car did actually put me through torture in case they called and couldn't get me, but I did tell the boys exactly where I was and how long I'd be off the air, so they would have told the coordinator. The fact that the bride was half an hour late arriving, did have me biting my fingernails wondering if my phone was ringing inside my car and would it be a faux pas to rush pass her in the aisle to check.
The wedding was very nice and my friend who was the mother of the bride, looked absolutely stunning in her silver grey.
It was very nice to meet all her sisters, who all look just like her and all very charming people. I should imagine that family gatherings are riotous affairs, as they all seem very bubbly ladies.
I always feel sad at weddings, knowing that I couldn't make mine work. We did give it a good try as we were married for 29years, but we were making each other very unhappy in the end and by cutting our loses then and me moving out to try it on my own, we were able to save our friendship in the end which we both value more than anything.
I realise how weird that sounds, but if we hadn't divorced, then we would have hated each other, so at least the years apart helped rebuild our friendship and we are still there to support each other now.
It's really quite chilly out there tonight and hang the consequences of rising gas prices, as the heating had to go on. I'm going to have to try and work out how I can have my oxygen concentrator on in the hallway without it affecting my heating thermostat which is also in the hallway. The concentrator throws out enough heat to confuse the thermostat and the heating keeps switching itself off. I will have to try and keep my concentrator in my bedroom, but then that makes the tubing awkward to move about with while attached, as then it's got two closed doors to work out how to get enough of a gap to thread it through. Either that or sit in the front room with my winter coat on.
I can't have the concentrator running in the frontroom, as it's like a puffy billy engine!
Oh problems, petty problems.
I do get quite jealous as my mother's bungalow is toasty and warm on 21 while mine is on 25 and still chilly...why?!
I'll sleep on it.
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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