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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 2 November 2011

Sunglasses and bobble hats

The last couple of nights have been colder thankfully, because ever since I changed from my summer duvet to my winter one, it had got unseasonably mild again at night.
Plus throw in some night sweats from this cold and it was the recipe for a week of uncomfortable nights sleep with arms and feet hanging out the bed and waking up looking more tired than when I went to bed.
This morning, I nearly looked human.

I went to Maldon again today, but not for a picnic...far from it, but for an appointment with the 'Slasher,' at St Pete's.
It was time to have my oxygen levels reviewed again. Luckily I have known them for years now and both her and her workmate are both totally off the wall.
One chats to you and the other sneaks up behind you and cuts your ear. The first time she did it, I was so outraged that she had did what I felt was like being attacked from the rear, that I swore very loudly supposedly under my breath at her! Strangely enough, we have remained really good friends as she is quite a fire cracker herself.
They have to take the blood from your ear, as it gives the best reading for seeing how much oxygen is travelling between the red blood cells...or something like that...basically to see how much oxygen you need to stop you from keeling over.
It is far less painful than having then the needle into your main artery in your wrist. Hell that one is a killer. That's the only time I cry when in hospital is when they take your blood that way, especially if you get a novice.
They can also see if you are retaining carbon dioxide in your blood, which can be dangerous if you are on oxygen. Oxygen is a medicine the same as other other treatment, get it wrong and it can be potentially lethal.
My levels have dropped slightly again, but I can still stay on 2litres of oxygen. Hopefully I'll stay about that level throughout winter, as I tend to go up again in the better weather. I know my breathing has been worse this last week, but I'm hoping it will sort it's self out again.

The conversation always reverts to sex with those two and they were teasing me mercilessly just as I was about to leave their office. I retorted that 'I wouldn't know, as I'm beginning to think I've turned into a virgin again as it's been so long since I've had sex, ha ha'.
Unfortunately I had the door just open enough and the waiting room was full of old folk, whose hearing was on top form. One lady and her husband tutted at me as I walked out into the waiting room and one of the other men actually winked at me!
OMIGOD thank goodness I had my dark glasses handy.

I'm wondering now are my swimming sessions over now until spring? Swimming definitely helps with my breathing and I have missed it the last couple of weeks, but the water is so cold at the pool. Ok, I heat up as I swim and I don't mean from weeing in the water either, but from my hard efforts of swimming. But that initial shock of getting in the pool, doesn't help my breathing either and isn't an inviting thought.
As soon as I get rid of this cold, I think I might try again before it gets too cold or try at another pool. Maybe at the health club nearby where you don't have to join, those pools are always warmer.
I don't want to give up, as I really enjoy the challenge and being alone with my thoughts, if the sunshine is shining through the windows, I can just about pretend I'm in a hot country swimming in their pool. But I can imagine my mother being horrified at the mere thought of me swimming in the cold weather. She's probably make me promise to wear a bobble hat in the water!
Could be done...

Lots of love Debbie x

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