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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 9 November 2011

Not a red letter day

I woke up today with what seemed like the hangover from hell, which was surprising as I haven't drunk anything stronger than a fizzy ginger beer in ages.
Everything hurt and my head was really fuzzy, so either I have got an infection brewing again, which I have thought for a while. Or I had got myself so upset about the lost smear test and it's added complications which has now set me back going active for my transplant and it has given me a real knock back.
I think it's both.

Today I had to wait in for the oxygen engineer to come and sort out my portable oxygen unit and hopefully for my car to be returned. Unfortunately no sign of my car which means that I'll have to drive the hearse for a bit longer.
In fact I've got to fill the car up with diesel soon as it has to go back with a full tank and I'm really dreading taking it in to the garage in case I get it wrong for some reason or can't get the diesel cap off. I'm so annoyed that this little car crash seems to have robbed me of all my confidence behind the wheel of a car. Well it's not so much driving it, more the reverse parking it and the fact that I still feel car sick in it when driving it any distance.
I will treasure my little 'Note' when it comes back home. I promise that I'll keep it polished and tidy forever.

The oxygen man came in the end about 3pm and started talking about cryogenics, which alas went straight over my head. I found myself just staring at him as he was talking about my unit. I'm sure his words made my hair move with the breeze as the words shot straight over my head!
As far as I know, it leaks, it freezes my left kidney when I wear it on my back and it drips water everywhere.
All I want is one that works please.

So oxygen sorted, well apart from there wasn't enough to get me to Maldon and you can't refill it straight away, so I had to set off to St Pete's for a pummelling with the old fashioned oxygen cylinder which are so heavy to carry.
Having this mock hangover while feeling car sick did not add up for a peaceful drive and the car park proved to be a challenge once again for me. It is a bit of a free for all in the parking stakes there and I was 3point turning for about ten full minutes again, much to the amusement of yet another male driver in the car park, but luckily he was more of a gentleman.
I am going to have a sign printed up saying 'This is not my car!'

In between my pummelling, we chatted about whether I have an infection or not and I told my physio that it was typical, that on Tuesday I couldn't produce any sputum till after the hospital sample collection had gone and today I've been producing non stop, but I had to stay in waiting, so I still couldn't get to the hospital in time for the sample collection.
I have done one now and will hand it in at my surgery tomorrow when having my smear test done. But even though I didn't want to, I have started my emergency antibiotics, as I do not feel right at all and I feel very under the weather. I've fell asleep four times today and I still have a raging headache and aching body. I never do feel right on a daily basis, but I feel yuckier than my so called normal for me.
Not feeling a well bunny.
So early to bed me thinks.

Lots of love Debbie x

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