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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 27 March 2011

Every one a winner

Blimey, I feel like I've lost a few days along the line here, as I hadn't written on here since Wednesday.
I have had a few bad nights sleep and that has rather sent me a bit topsy turvy in my sleeping habits, plus I have a foggy head.

Thursday I had to take mother out to lunch after a really pants night's sleep and she is becoming increasingly hard work just lately. Where ever you take her nowadays and I don't mind taking her anywhere she wants to go, she either doesn't really like it or isn't hungry even though she has insisted that we eat and will order three courses every time!
I know that it is more social for her than anything else and I try to be aware of that, but I was eating out that night with the girls from work and could have done without two meals and with extras where she kept putting bits of hers on my plate.
I went to the comedy club after the evening meal with the girl which was good fun, but I still didn't sleep particularly well again, so getting more tired by the day.

Friday was my day to let 28 students from Essex University loose on me, so they could learn how to do postural drainage on me and to learn how to pummel without slapping!
I am happy to report that every single student was a winner and their prize was a sample of phlegm, although there was a bit of slapping going on that I had to tell them about and I had burst some blood vessels around my eyes and down the side of my face from coughing so hard to make sure everyone got phlegm!
Small price to pay really and they all have to learn somewhere. I'll be rather surprised if I have any phlegm again come next Christmas after that!
I did sleep for a solid 90 mins on the sofa and then again for another 30mins in the bath where I was so exhausted.

Saturday I had a bitty day, doing a bit here and a bit there and not really achieving much at all, as still extremely tired.
We went to the Silver End Scout's Music Quiz in the evening and if it hadn't been for the fact that my team let me write down the answers, then I've had nothing to do as I was next to useless. I am one of these that goes 'Mmm I know that one' and hasn't a scooby do who sang it.
We all went round to Greta's afterwards to finish off the night, but I had to leave when I ran out of oxygen. Shame as I had actually found some games on her Wii that I could do without knackering myself too much.

Today lost an hour thanks to British Summer time starting and lost my temper with mother. It is the first time since I was a stroppy teenager that I had to walk out and leave her in case I shouted at her and it really upset me.
I had so much to do here with all the filling in the government forms that arrived yesterday, who want to know the ins and outs of everything. How do these people con the government, as I find being honest hard enough? I do have a fear of forms as I've mentioned before in case I tick the wrong box and they whip me off to jail for fraud.
My head was hurting and mother was in one of her snappy moods that used to infuriate my poor old dad when he was alive and I really had better things to do today than to suffer that. If she wanted to go out then fine, but not this sniping.
I felt no better for going home as I have been back twice to make sure she is ok, and she told me when I went back the first time, that she fell over as soon as I left. I have already had my sister on the phone wanting to know what happened and why we were arguing.
Great... I am a bitch.
Hopefully we all feel happier tomorrow.

Lots of love Debbie x

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