About Me

My photo
I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 20 March 2011

Little girl, you've had a sleepless night

First day of Spring today and although it's not as bright as yesterday, it was still a nice day and that makes you feel more alive. Especially when you can see the daffodils and the catkins by the road side, promising you good times ahead.
I seemed to have got quite a bit done today, well Derek did really, but I did quite a bit too, which I'm quite impressed with as the full moon last night really interfered with my sleep and I found myself just lying in my bed staring at the moon for what seemed hours. I'm sure it wasn't, but I didn't get so upset about this bout of insomnia like I used to when I was going to work.
If I sleep I sleep, if I don't, well I just sleep in the day, it's not a matter of life or death is it.

I zoomed off to Chelmsford to take some bits back to M&S that I brought on my girlie day out with Julie at Lakeside. I had every intention of getting a refund honestly, but I really did need the gorgeous summery white top and new coloured knickers that I brought instead. But hey, I didn't buy the most beautiful summer coat in the world that I saw in there, which I really, really lusted over, surely that is worth a brownie point or two. I suppose the fact that I could hear Derek's voice in the background, asking me if I really needed it, put me off a bit.
So I guess I couldn't think of a good enough excuse to buy it other than I really wanted it and now I'm a so called pensioner and on benefits, I have to be good as I've spent enough now on new clothes and if I'm very good, maybe the boys will contribute come 'Mother's Day'?

Talking of my boys, I decided to call in and have coffee with my eldest son which was very nice, especially as it's been a while that I've been there. He looked well. I also spoke to my youngest who is home for a flying visit from being on tour and he sounded well too. I guess you never stop worrying about them do you. Whenever I see them, I just need a cuddle from them. Role reversal I guess.
They will have to look after me if I am lucky enough to get this transplant and I guess I will look at them with the same eyes that my mother looks at me when I am tending her wounds or dressing her. Luckily mother is coming on great guns again.

I was going to do my paperwork tonight and I really not looking forward to it. I have had two letters from the tax office to fill in once I got my ESA results and now I've had five letters from 'Jobseekers' about my ESA. I've waited for ages for the ESA to come and now five letters all come at once, a bit like buses!
One of these five letters is dated the 14th and the other the 15th March and both ask to have the evidence they require sent back to them by the 9th March... now where did I put my Tardis?
I think I might put off till tomorrow morning as last night's lack of sleep is having an effect on me now and not a good one. Lack of oxygen mixed with lack of sleep, is not a cocktail made in heaven!
I am so scared that I will put something down wrong or tick the wrong box and I will be frog marched off to jail, so I need my wits about me. Watching 'Dancing on Ice' followed by 'The Only Way is Essex' is as taxing as my poor frazzled brain can handle at the moment!

Lots of love Debbie x

No comments:

Post a Comment