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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 22 March 2011

Lost; one brain

It is official, I bloody hate form filling. I think this is when I hate living on my own, as I have no one to help me when I need it there and then and no one to shout at and blame when I can't find the correct papers.
I am really lucky as my friend's husbands have all been wonderful at helping me with various tasks, but I can't rely on them all the time as it's not fair and I should be able to d to this paperwork on my own, but my brain has turned to mush!
I do have a good filing system with coloured files etc and can usually put my hand on any paperwork that I require, but can I find my tenancy agreement, can I hell as. I have turned my top drawer inside out and tomorrow I will take every drawer apart and go through it again, before admitting defeat and ringing up Greenfields and asking for a copy.

Form 1; Getting an up to date sick certificate from the doctors for Jobseekers.
Normally she just gives them to me over the phone, but this time I had to go and see her. Why? No real reason, just she wanted to see how I was getting on and to touch base which was all very nice, but I have so much to do today.
She gave me a certificate for a year as she feels that after my transplant, I might want to return to work. Are you kidding me, why? I have dragged my weary ass in for years when I felt that I physically couldn't go on and now she is the second person to say I can go back to work.
Maybe when I have energy again I may feel very different, but at the moment I can't even visualise what it must feel like to be able to breathe normal again and not need to sit down after having a shower, standing stirring gravy, hanging out my washing or just something simple like bending over to put on my shoes.
Form sent...tick.

Form 2; Applying for free prescriptions and dental treatment etc on a HC1 form. Once my money gets short and living on a pension gets tough, then I'm going to need help. Why shouldn't I have good teeth for free?
Form sent...tick.

Form 3; Applying for my rent and council tax rebate. This is where I thought I had all the correct paperwork and after waiting in line, I was told that I hadn't, but I might get away with what I had brought in.
I felt so stupid, as I used to check our students forms for various funding and then I was the one sitting behind the desk shaking my head, wondering how hard was it to read a form... Actually bloody hard, I am so sorry students that you had to go through this and I do hope that I was never to condescending to you.
Form handed in, but have strong feeling it will be coming back again, so no tick!

In fact I think all of the forms will probably come back to me and that includes yesterday's tax form, as at the moment I feel incapable of stringing a sentence together, let alone completing a government form.

I had my physio done at St Michael's today and sorry about this if you are eating, but my phlegm was very green again and I have a hell of a headache today. I'm hoping the headache is stress from mother, as she has been rather demanding just lately and has already given me yet another shopping list for tomorrow.
I'm not really enjoying my food either at the moment as I can't taste it unless it's really strong flavours. I do hope I haven't got something else brewing. And if it is my drugs, I do hope I will get my tastebuds back again, as it's been a while and I love my food.
I received a letter from Broomfield hospital in the post today. Not actually for an appointment for my coronary angiogram as yet, but advising me that I am on the list so it should be soon, but they want to decide if I have to have a right heart catheter too.... Ooo why?
That sounds so painful, will I be knocked out for that or what?
I am feeling a bit wimpy about this procedure. Whip out my heart and lungs no problem as I'll be asleep, but having this done under a local... arrgghh no likey at all!

I feel a bit like a limp lettuce today, so time for a brandy and an early night.

Lots of love Debbie x

1 comment:

  1. Hellish form filling. When I was buying the house I used to dread opening my front door everynight to see what fresh hell the postman had left for me.. Xx

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