About Me

My photo
I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 21 March 2011

Simple as

I managed to catch up with the lack of sleep from Saturday night and slept fairly well last night, but today was hard work and I needed to be rested in body and in mind.
I know I have this necessity in me to make every minute count in my life, but sometimes I just wish the hours would just slow right down and let me catch up as today was full on.
I agree to things sometimes without thinking things through first I know that, but that wasn't really the case today.
Today was a form filling day. Tax forms that I didn't understand, especially one section, so I rang the helpline for advice. I waited for nearly an hour in a queue. I had eaten my porridge, drank my tea, put on my make up and played the fish game on my mobile and all one handed, while I waited and waited and wantedsomeone to just talk to me.
Zilch.
I gave up in the end and did a bit of guess work. A kind of ennie, meanie, miney, mo, so I do hope that I won't be having a complimentary holiday thanks to HM prison services!
I now have to go to see the doctor tomorrow to get yet another sick note as they wouldn't do it over the phone. What a waste of an appointment, when a real need could be seen.
I then have to send that off and then fill out more forms to sort out my rent and council rebates. I loathe forms as I just can't take in the written information, never could and now I'm worse since lacking oxygen.
I found myself crying with frustration.
Rehab was hard work today, which some times is good as it gives you feel good endorphins, but not today. Some exercises I did better than normal in and others I really struggled with and really just wanted to go home to sleep, but no such luxury.
I had yet more shopping for my mother, plus I had to take her steps back to her bungalow from mine, so I tried to do it in one journey. Not my best idea I know. Also I saw her recycling waiting to go out from her front door to by her hedge ready for tomorrow morning, so I tried to do it on route.
Did I get thanks? No: I got my mother telling me to hurry up because my eldest sister was on the phone and wanted to speak to me and I shouldn't wear soft shoes and creep up on her! When I told her to hold on as I was balancing the steps, she shouted at me to hurry up and told my sister that I was in a bad mood.
Great, I felt like Cinderella with a broom up my arse and my next trick after listening to my sister bleating on about how hard she had it with her mother-in-law, who incidentally lives about six hours away from her and she only sees about twice a year... was staring at my mother's privates while I put cream on her under belly again.
Yay!
At least I saw my youngest for coffee before he zoomed off again on his last leg of his tour and maybe I shouldn't have gone to the cinema at lunchtime, but you are dead a long time, so make each minute count I say and the next person that tells me that it must be nice not having anything to do now I've retired, I'll chin... simple as!

Lots of love Debbie x

No comments:

Post a Comment