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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 10 March 2011

Pass the Resolve please

Never realised that you can have a hangover from being excited and joyous, but you can as I have.
As last night went on and the congratulation phone calls and texts kept coming, I felt more and more disorientated till I gave up and went to sleep and woke up with a splitting headache, a sore throat and the urge to sleep until till gone 10am.
I didn't fight that urge at all.
So today was a day not to hurry to do anything. I don't know if I am still battling with this cold question mark infection that is skulking about in the background, but I was extremely pleased when I got the text from Julie to say forget about going to Primark today.
Today was not a day not to push myself. Today was a day to chill.
I have to get the balance right and get these bouts under control. Something like having a cold or a temperature in the months to come, could prevent me from having the transplant when a donor is found. I don't want to waste my chance at a future, so I must get strong again.

I still have that blasted metallic taste in my mouth which is rather spoiling my food at the moment and more worryingly, my brandy, but I am wondering if the zinc in my vitamin C tablets isn't the source of that problem.
Zinc helps with your immunity system, but looks like it spoils your taste buds. Let me get over this black cloud and then I'll ditch the zinc.
Surprisingly my stats have been quite good today, although my fingers were quite blue again, but then my body has always been a bit of a contradiction. I am a freak of nature!
Just have this lethargic feeling and extreme tiredness, but hey I wouldn't be having this transplant if I was bouncing about like the Easter bunny would I?!

Lots of love Debbie x

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