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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 3 March 2011

Let me out

House arrest has started again only this time I was allowed out at night on parole. The reasons are not because I have another infection, but just waiting for people to arrive. Although tonight, I do have a niggley throat, heavy eyes and the urge to eat crap, so I hope I'm not brewing something horrible again. If I am going down with another dreaded something or other and I find out who has shared this one with me, they will be banned for life. I just hope it is staying indoors with central heating on for two days is the reason that I feel pants.

Yesterday it was waiting in for the oxygen guy to change the mothership. He phoned about 8.30am to check that I would be in and then arrived at 4.00pm. I don't know why I had to be there, as they don't normally require me to be there, but it was the really helpful guy and you can't be annoyed with him.

Today it was waiting for my physio, but as they all come at different times ranging from 1.00 to 5pm and as I didn't know who was coming, I just had to wait.
My own fault really as I should have got up and got moving earlier, but as I felt so good last night, there is always a yin and yang in life's balance and this morning was the not so good part.

I am not at all good at staying in when I have things to do outside. I know I should be grateful that I get all this help, but sometimes my life revolving around the NHS is soooo boring.
Would you believe that I even sat and sewed on sequins onto my new reject cardigan that was missing some, hence why I got it cheap!

Still I managed to get parole out in the evening. Last night Sam, Jean and I went to Southend theatre to watch 'Calendar Girls,' which was good fun and reminded me so much of our much loved, but now defunked village WI. Good cast too. I felt remarkably well and was walking around unaided and got to the bar in record time, in fact I got there before Jean and Sam! Although there were so many people coughing and spluttering in there throughout the performance, that I think I may have found my source of the possible lurgy.

Tonight Greta and I went to see 'Paul' the new Pegg and Frost film and we chuckled most of the way through it. It was jolly cold in there again and I ended up wrapping myself up in my pashmina. Mind you it's bloody freezing outside again too.
I seem to spend my life feeling the cold just lately, especially my hands. If I'm not doing my impression of the Boston strangler by wearing my leather gloves around the house, then I have them rolled up in my jumper.

So tonight, two paracetamol and a stiff brandy... kill or cure baby... kill or cure!

Lots of love Debbie x

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