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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 14 March 2011

Helpful hints

Well the colour on the walls is really nice and strangely enough, changes in the light. Darker in the daylight and richer under the electric light.
What I'm not liking is the dust. My goodness where does it all come from? I know that we had to... what am I saying we?...what Andrew had do was scrap off the existing wallpaper first and I think that is where the dust has come from.
So it was a waste of time, me worrying through the night that I should have brought low odour paint, as I can't smell anything, but boy am I eating dust.

The day was spent rushing here, there and everywhere. A massage first to try and sort out my shoulder again. I heard it click in Friday's rehab when doing arm raises and it's been rather painful again since then.
Then I drove to Chelmsford to see a bank manager about getting an ISA set up. Apparently the fact that I was made bankrupt five or six years ago, may be a problem and I have to go back again on Wednesday to see someone else. Great. I just hope that I can park nearer this time, as I had to walk a way today as the carpark was closed and dickheads without a blue badge park in the disability bays, thank goodness for my go faster wheeler!
Then off to the airport with Reni and three huge suitcases as she is off to go to Nigeria to see her friends. She is so tiny and those suitcases were so heavy that they would Julie's holiday suitcases a run for their money!
Bless her, she may be little but she was humping them in and out the car and on to a wayward trolley with no problems, like a woman on a mission. As she says, 'Don't mess with a Hungarian woman!'
In between all that, I was sorting out my mother. Her cyst on her back is starting to look rather angry again and we doubt whether he will cut it out again at this rate.
When did I find time to work I wonder?

I also had an Ulrika moment and worked out how to get into my new design Colistimethate phials. I've asked four members of the respiratory team, two teams of pharmacists and my specialist and all of them looked at it as if it was a Rubik cube that I had asked them to solve! What you do have to do, and this is for those people at home who are risking stabbing their fingers as I type, is to press down within the little imprinted circle on the metal cap with a knife tip and it will then flick up enough for you to pull off with the aid of the knife.
It does dissolve very quickly however once you add your saline, so that bit is a lot better, but you will need your syringes and needles for this one.
A helpful hint!

Lots of love Debbie x

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