A tad on the slow side today. Luckily for me, mother wasn't in the mood for going out anywhere, so I had a day where I could go at my own speed and do my own thing. It did involve getting up late, but as it was the first peaceful nights sleep I've had in about a week, I wasn't ready to interrupt it and to get out of bed. Plus my dreams weren't haunted by kettles as I expected them to be!
My only real task of the day other than getting my washing in and out, was to pick up Reni from Stansted Airport. It was good to see her back again as she had been over to see her family in Hungary for a week.
I still get a real buzz when I go up to the airport, filled with memories of my holidays past in Turkey. I really hope that one day I will get the chance to go there again and see all my friends that live there before they forget who I am.
I wonder what the decision will be on Wednesday when I see my specialist. If he says that yes I can have the referral I've been waiting for to go Papworth, then there's a glimmer of hope that one day I'll get a second chance and get my life back and that I'll be able to return to Hisaruno again. If no, then I'll take my chances and hire the oxygen to use on the plane and while I'm there and fly out for a week come what may. I just want to go back to the place that is so special to me.
When I have times when I am scared and there has been a lot over the years and not just because of my illness, I do a bit NLP and switch myself off and visualise myself standing in the sea at Oludeniz. It's not hard to feel the heat on my skin or the water as I swish it around my body with my hands. I can visualise the whole scene of the mountains, the para gliders floating in the blue sky and the heat haze coming off the beach as I've done it so many times for real. I even have music that can transport me in seconds back there, as I've heard it played there in the 'Help Bar' so many times. The track is Jakarta and it's beautiful.
If I do get that transplant, that's what will be playing in my head as I go under.
I busied myself around mother's in the afternoon and actually got her to sort out her clothes at long last as her wardrobe was bursting at the seams, well I sorted them while she stood on guard to make sure I didn't throw out anything that I shouldn't!
We came to an agreement in the end that I put the clothes she doesn't wear anymore or has never worn because they are either too small or really bad buys, in a suitcase on top of her wardrobe in case she changes her mind. Hopefully she will forget they are there.
Then a night in front of the TV for me while eating my roast dinner. My chicken smelt divine while it was cooking in the oven, but I still can't taste anything unless it has really strong flavours, so it tasted really bland even with all the herbs on it.
I seem to remember that one of the common side effects on the list of hundreds for Rifampicin, was a loss of taste, but I stopped taking them a couple of weeks ago now so surely it can't still be them can it?
I'll ask at Rehab tomorrow.
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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