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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 6 September 2011

A couple of good chats over cups of tea

Blooming heck, we have fast forwarded past Christmas and straight on to what seems like March outside!
I laid in bed this morning and believe you me, I was scared to open my curtains as there was banging and crashing as flower pots were being blown over and I wasn't sure if it was my new shed that was moaning and groaning in the strong winds or what. My poor rotary washing line is now left doing a jolly good impression of the Leaning Tower of Pizza.

Really had trouble getting going today as I felt so lethargic this morning and had only just got my breakfast, when I had my expected company arrive on my door stop, but on time on this occasion. I gave my apologises and had to eat my breakfast in front of them.
I met one of the ladies in the village charity shop at the beginning of the summer and we got on really well chatting away. The next time I met her, it was quite by accident on my doorstep in fact as she is a Jehovah Witness.
I really enjoy her company as we do talk about everything and anything and yes, the bible too. But I have a fascination about all religions and although I am a bit of a pick and mix sort of woman when it comes to religion, I do believe that all religion requires the same basic, for you to be a good person and besides I enjoy asking her questions.
My new friend seems to get me and we get on well, but I think I am just too weird for some of the friends and family that she brings to meet me.

She was telling me a story about when she was once standing on a mountain top in France when visiting her elder sister and was overcome with the beauty of what she was seeing all around her.
So I told her my story of when I was on Ben Nevis, I won't say the top, as a mountain goat I ain't, but as far as the cable cars could take me and some.
It was when I was fitter of course. I had left my mother at the bottom having a cup of tea in the little cafe in the gift centre and I took myself off to the near top. You couldn't come to that part of Scotland and not go up if you were able.
There was a huge sign as you left the cable car station, saying 'do not pick the heather' and after I had took in the amazing panoramic views, me being me gingerly sat down on the mountain side, looked all around me and was just about to sneak a piece of heather away into my pocket, when my mobile phone rang... I thought it was God himself about to give me a rollicking for stealing!
Of course it was Julie, who had phoned to ask what I was doing and how was the holiday going. Once I swallowed my heart back out of my mouth and where it should be back in my chest, I called her a string of rude names, which was unfair as it was me that was contemplating stealing and she is my soul mate after all, so I guess she knew to call just at that right time to stop me from error of my ways.
Luckily, both my guests thought the tale highly amusing and weren't offended.

This afternoon it was back to hospital for physio and a chat. I complained of a thick nose, a grotty taste in my mouth and feeling very tired all the time. Maybe I have been overdoing it in my bid to impress Papworth or maybe I have an infection.
Both could be possible, especially the latter, seeing that the rehab whinger was complaining last Friday that he had another infection, but carried on coughing without covering his mouth while standing next to us.
Now that is just not cricket.
So tomorrow, normal procedure, sample of phlegm in a pot and drive it back to the hospital for testing and fingers crossed it's just a summer cold from the weather chopping and changing, and I'll slow down on trying to be superwoman from now on.
We had quite an interesting chat about the forthcoming test at Broomfield and what happens next at Papworth.
Whenever I have these chats with the physio staff, I actually do believe that this transplant could very well happen soon and that I will get my happy ever after ending.
I know I talk about the transplant all the time... sorry folks... but sometimes I forget that I really could be lucky and it's not a figment of my imagination. And that would be worth more than all the flash homes, cars and all the money in the world. That I could work again and be part of things again.
Driving back from the hospital, I got beeped again from a driver behind me who thought that I wasn't speeding on to the roundabout quickly enough for his liking, after all I had held him up for all of what, 4mins?!
I have decided to get a bumper sticker done saying that 'Hello... I am waiting for a lung donor, I don't want to become a donor myself yet thank you!'

Lots of love Debbie x

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