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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 28 September 2011

Sunny days ahead?

Believe it or not I slept really well last night thanks to my little chat.
I wondered, and not for the first time, whether I should own up about having a guardian angel with whom I have a nightly con flab with or to keep sch um in case the psychiatrist at Papworth stamps my folder with a great big red 'reject' across it!

I know a lot of people think I am loco, but there again there are as equally as many that think it's normal to believe in guardian angels and the results speak for themselves really when I have the various invasive tests done and yet, I'm a calm as a cucumber in the doctors hands.
If it helps, then why knock it, we all have to believe in something?

I actually forgot to set my alarm clock before I fell off to sleep last night and woke up really refreshed for a change just before 8.45am. Maybe I should stop setting my alarm clock an hour earlier than I want to get up, just so I feel like I'm getting a lie in when it goes off?
And still I was at the dentist early for a change.
Happily everything is alright in my mouth and the dentist is happy to write a letter confirming that my gums and teeth are in good shape and there's no treatment out standing, and as there was no mention of a charge for this letter, I'm hoping that she's doing it in goodwill?

Oliver has managed to get the two days off from work, so it's all systems go ready for next week. I phoned the hospital and confirmed it, so I have just got to wait for my email from them with all the instructions.
It will be the first time in years that I have been able to go somewhere and stay over night, without having to take an arctic lorry with all my medical equipment.
Thankfully I don't feel as stressed today, although Reni burst into floods of tears in the car when we were on our way to Tiptree.
She is worried about Oliver worrying about me, but I explained that he wouldn't be on his own and that he'd have Dwight now to share the worry, plus his dad and plus Julie would always be there for him.
Oliver is very much like me, he takes on everything and everyone else's worry on board, flips out every so often and then brushes himself down and gets straight back on the roller coaster for a bit longer.
If I didn't write this on a nightly basis, I would have flipped out ages ago!
My main fear is what she said yesterday and again today, about whether that this is the right time for me. I honestly don't think I could bear it if they postponed again, but if I have to then so be it. i just hope they are used to women swearing like a trooper!

It was lovely and hot outside today, so Reni and I sat sunbathing in the garden after lunch.
Here's hoping that I have a lot of sunny days ahead.

Lots of love Debbie x

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