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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 16 September 2011

I am a worry wart

A bit of a downhill spiral last night before bedtime where I felt really sorry for myself.
By now, I have got to realise that this feeling of doom and gloom happens every time I have yet another test and I have a pretty disgusting one looming up on the horizon for this Wednesday coming.
It's the day of my 24 hr pH pull-through examination or otherwise known as an Acid reflux test. Basically it's where they stick a tube up your nostril, down the back of your throat and position a sensor in your gullet to record everything that goes on down there for the next 24hrs.
And then joy of joys, they go back in the next day to remove it. Mm hmm I can't wait for that jolly little outing!
I had to stop taking my Omeprazole tablets yesterday to get ready for it and didn't think that I would notice that much difference that quickly, but I have and that scares me about what it means re the transplant. They said that it wouldn't stop me having it done, but it would affect how they would treat me afterwards, but what happens if it turns out to be something different to what they were looking for in the first place?
I was told that I would have to overcome hurdle after hurdle for this transplant, but I am getting so weary of trying to look on the bright side all the time.
I've taken to drinking coca cola, diet of course as I'm doing hurdles trying to lose weight too remember! But I'm drinking cola as I remember when I was pregnant with the boys, that it was the only thing that helped my heartburn then and when carrying Dwight, I had it really bad. Weirdly enough, I was told that bad heart burn is a sign that the baby will be born with loads of hair. Dwight was a bald as a badger, it was it Oliver that had a full mop of red hair.
Maybe I'm just pregnant now with a hair ball after all?!
Still this morning was another day and everything feels worse in the night doesn't it?

Mother actually got her garden rail put in so she can go out into the garden safely now and I managed to order her a new large button remote for her TV, as she keeps catching the button that switches it back to the analogue channel.
So she's now a happy bunny that things are sorting themselves out at last.
Jean and I went off swimming again lunchtime and it wasn't as busy this time which was easier for us for going slowly up and down the pool.
I managed to do 12 lengths this time, which is two up on last Friday and I managed to position my foam woggle float better under my body, so I could use my arms more and I wouldn't bruise as much.
Though the tops of my arms are now hurting like hell, as from swimming I went on to rehab and I swear I'm going to end up like Arnie Schwarzenegger with all this weight lifting!
Ok the little bulges on my upper arms are about a million times smaller than his, but I do feel so much better from all this exercise... so much better in fact, that I fell into a deep sleep on my sofa as soon as I got back from rehab!

Night night!

Lots of love Debbie x

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