Well it looks like I'll be packing my bags with my new nightie, matching dressing gown and new slippers care or Ann for a little holiday next week. I hear Cambridge is the place to be at the moment or should I be a little bit more specific and say Papworth is the hot spot.
Yes, I got the call from the transplant coordinator today to go for my three day stay as soon as possible, this coming Monday actually, but I have go within three weeks.
Blimey, there's no hanging around now, but it all depends on if Oliver can get the time off work that quickly. I'll be gutted if he can't.
When she asked me how I felt, I had to be honest and say I was really excited, but I'd probably burst into tears or throw up as soon as I put the phone down! She said that was a normal reaction, so that's cool.
She's asked for the boys to come up for two of the days, Monday and Wednesday if possible, so they can go over everything with the doctors and meet partners or dependants of other transplant patients to find out what it's like from their point of view. I was going to say transplant survivors, but I suppose they have to offer both views don't they?
She said that there would be a day of more tests, but none that are invasive now which I'm glad about. They have to check whether or not that I'm fit enough for this or if I could go a bit longer without the transplant if too fit, which is a bit of a worry as I don't know how I'd feel if they said 'come back next year.'
I reckon I'd probably cry my eyes out non stop until then!
In fact I'm avoiding going to bed at the moment, as I'm pretty sure that the way my mind is jumping about with all my feeling in turmoil, that I'll be laying there wide awake until dawn.
The Pimms has come out, although it was only two caps full in a glass of diet coke and I'm now thinking of all the things that can go wrong again, rather than the things in my favour and I feel annoyed that I've drank that tiny drop of Pimms.
If I think of what can go wrong now and get it over and done with, then anything good that happens has got to be a bonus.
But I have got a major headache now and to top it all I've had my flu jab today, so I'll probably have major reactions to that... Oh woe is me! Bloody hell I'm a whinger!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
No comments:
Post a Comment