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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 4 September 2011

Thank your lucky stars

And we are back to normal...rain and lots of it! Luckily it held off until mother and I had got to Maldon for our picnic, but it did scarper any plans of me going for a fitness building walk down the prom and judging by the envious looks of people sheltering unsuccessfully under trees from the torrential rain while we were in my car munching on our dinner, the walk can wait.
I'm happy to report that there no ill effects from the swim yesterday and I shall certainly do it again, only next time with a woggle... my name for the foam sausage type of swimming aid... so I can use my arms better and build up my upper body strength more. Although the float was excellent to give me confidence, I couldn't use my arms enough and one arm at a time tended to send me in semi circles!

I'm still feeling really tired at times and I do feel a little out of my comfort zone in not having my 'docobo' still at home, but I have to wait for a Sim card unit instead of using the phone line to work it, so I must learn to be patient.
The docobo gives me a pointer of when to take things that little bit more carefully and as my stats sometimes have a life of their own, it makes you feel that bit safer as there is also someone reading the results at the other end.
I still have at the back of my mind that time when I walked into rehab and felt a little bit light headed but not unwell, but my stats when Hannah took them, were only 73 and I had them breaking out in a sweat with their fingers ready on the 999 button if they didn't rapidly improve!
Thankfully once I sat down and zoned out all was fine, but it was a hell of a warning to me that being breathless is not the only sign that your body is in trouble.
I do have a habit of pushing myself a little bit too much at times over the years and paying a high price, but I am learning all the time.

Ann and I threw caution to the wind and went to see Fright Night at the cinema. We don't do horror films, but this was supposed to be a comedy too, but no I won't be sleeping with my windows open for some time, so perhaps just as well the weather has fast forward into late Autumn.
Driving home though, the moon in the sky looked rather imposing even though there was only half of the moon showing, but just as I got home, I saw a shooting star.
Perhaps that's why the moon was shining so brightly, to get me to look up at the sky perhaps?
It wouldn't take a brain surgeon to guess what I wished for... to get my new lungs and for a fairy tale ending so that all ends well.

Lots of love Debbie x


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