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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 11 September 2011

Days like this, make you glad to be alive

That horrible sluggish feeling that I had all day yesterday, has passed thankfully and left me feeling more like the day today: brighter.
Decided to try and make the most out of the weather and me being more energetic today, so as normal; it's Maldon time.
I know I am turning into a creature of habit, but my mother really enjoys going there and watching the world go by from the comfort of my car, as we can park close to the boating lake which overlooks the river so she can see all what goes on without me hauling her in and out the car too many times.
And I get to go for a walk on my own now I'm not scared of keeling over and get to soak up the sunshine, as well as feel part of the human race again.
My 'go faster' trolley, was a really good buy...thank you sons...as it certainly gives me confidence to go a little bit further each time.
It was so nice walking down the prom today with the sun on my skin and the breeze coming off the river onto your face. Listening to the gulls screeching at each other as they waddle across the mud flats and watching the river life go by in the shape of little dingies to large Maldon barges with their characteristic maroon coloured sails.
I will never take anything for granted ever again.

I also did some gardening in the morning, well my ex husband did the gardening and I just did the pointing. I used the excuse that my oxygen lead from my concentrator wouldn't stretch that far! But we both agreed though, that this was the first year that I've even thought about re potting my garden planters this early ready for my autumn/winter show.
I enjoy sitting out in my back garden talking to my ex over a morning cuppa. We talk about our boys... well they are men now, sorry chaps... and what they are getting up to and discussing people that we both know and what they are up to too. A right pair of gossips!
We were married for 29 years, so I guess we will still have a lot in common. Just a shame we couldn't live together in the end, but we are best friends, so that's good. Funny though, as our relationship confuses the hell out of most people!

I went to the cinema tonight with Ann and had to spend a penny three times! All this healthy fruit and veg for my diet is certainly having an effect on my bladder and even though it was an action packed film, all I kept thinking about was, should I eat my Hi-bar now!
I get weighed tomorrow and I have no idea what the outcome will be when I get weighed in. I sometimes think that Papworth have set me an impossible task to lose this 1st 11lb.
I am pleased in one respect that I'm not going for my three day stay until October now, as it will give me a bit more time to lose the next stone and 1lb, which I think is going to be the hardest to shift. I do honestly believe nowadays that everything happens for a reason, because if I was to get a donor straight away after the three day stay, the extra weight that I'm carrying would have impeded my recovery rate.
Makes you think doesn't it? Just wish I could stop thinking about food all the time though!!

Lots of love Debbie x

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