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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 24 September 2011

David Essex is my saviour

Hoorah for David Essex! He is my saviour today.
I woke up feeling a bit rough after last night's very unsettled sleep thanks to a case of really bad heartburn and really bad bottom burps.
And of course non-stop worrying about Barbara being up in BasVegas hospital on her own.
Being in Broomfield didn't seem so bad, but she seems so far away in Basildon.
I have been dropping off to sleep really easily just lately where I am actually physically tired now, but last night I saw every hour half in till about 3.30am and I wanted to be up and dressed and semi human when Derek came to fix my 'go faster' trolley at 9.30am.
Unfortunately, I lost a nut out of one of the handles up at Broomfield Hospital and bless him, he has come to my rescue again.

I started off not too badly. Derek fixed my 'go faster' and my curtain rail too, which had decided to part company from the bedroom wall, so two main jobs done. And I got my first lot of washing out on line when he got here and managed to strip and change my sheets on my own too.
So I was doing ok.
Then I made the mistake of calling my mother to remind her about her manicure appointment. She was looking forward to having it done last night and today she didn't want it done at all, no way!
With the after effects of the 24 hour ph pull through examination kicking in, in the form of a roughed up throat and sore skin from the very sticker plaster or was it gaffer tape! Plus the worrying of Barbara, the kindest thing for me to do, was just to tell mother to sort it out herself and put the phone down.
she know has beautifully manicured nails.

By the time Reni came round to see me, I was like a tightly wound spring and ready to either burst into tears or yell my head off in the garden to vent off steam.
Barbara is fine as I had texts from her daughter and the Barbara herself. She has had the stents put in and can go home tomorrow, but her texts about leaving her lungs to me worried and unsettled me a lot, and set me off worrying even more about her and all my friends and then even my own mortality, which I thought that I had got a handle on.

Luckily, we couldn't park anywhere near the theatre at Southend where we were going to watch David Essex in his play 'All the fun of the fair.' So we had to walk a good 15mins either way and it was quite uplifting marching out my stresses with all the seaside twinkly lights to guide me and I could do it!
Thanks to the weight lose, the swimming and the weigh lifting at rehab, I could walk with my oxygen on while holding on to Ann and at quite a steady pace.
Ok Mr Essex could have probably heard me and my heavy breathing coming from the comfort of his dressing room. I hope he appreciated my sterling efforts to get to see him, but my mood has now lifted again and I feel I'm back in the race.
Oh and the play was good too by the way!

Lots of love Debbie x

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