What goes up must come down as they say, but in my case it's what goes down must come up and up and up!
After the 24 hours were up, I stood in the disabled toilet at Broomfield hospital and pulled the sensor out from my gullet as instructed, although they did miss out 'the ladies toilets' part from what I remember, and I could not believe how long the damn thing was. It had to be at least 18" long I kid you not and the tape that it had been stuck on my face and neck with, really made my eyes water when I took it off...Ouch.
It made Reni and Ann green too when I showed them. Shame I forgot to wipe the bogie's off before showing them!
I actually did ok last night and even though I thought I would probably strangle myself in my sleep with my oxygen tubing and now with the sensor wires tangling up together, but I think remained in the same position until I woke up this morning... Result.
This scary part is that I am now hoping that the results from the NHS walkman will go straight to the Consultant GI physiologist who performed my procedure and not get mislaid on route.
Then straight on to my specialist and then off to specialists at Papworth, where they will say 'lovely, everything is straight forward, we'll forget about the wait, here's your new lungs!'... I wish.
It's 12.35am, I have just rang my specialist's office and left a message telling them I've handed it in at Out Patients as instructed... just in case. Because there's no way I want to go through that again, not for all the green tea in China. Not on your Nelly. Been there, done it and got the snot on my t-shirt!
My lovely friend Barbara is in Broomfield hospital now as we speak, as she had a heart attack last Wednesday at home and has only just managed to get in to see her doctor at her surgery as she didn't want to make a fuss.
I hope with all my heart that she gets well soon, but it sounds like she might be in for quite a while, as they are talking about putting stents in her heart.
Please, everyone that reads this, please send her good positive thoughts and wish her well soon.
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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