I think I may very well self combust before Monday morning actually gets here, as my head is a regular whirling dervish with all the thoughts and lists flying around inside it.
I opened the email from Papworth late last night and totally misread it. I read it that they weren't going to decide on anything at this assessment and at that point I nearly threw myself and the laptop on the floor in distraught state, wailing like a banshee.
This was probably down to the fact that I had a glass of wine, all be it 'Weight Watchers' wine so not awfully strong, but strong enough when you haven't been drinking wine and I'm a bit of a light weight when it comes to vino, so I was a bit more foggy than usual.
What it actually said was when I read it properly in the morning over a cup of tea... I quote was;
...would not necessarily imply any commitment on your part or ours to proceed to transplantation.
So it was a get out clause for me if I suddenly changed my mind and wanted to leg it out of the hospital and if things aren't totally in my favour now meaning that they can't do my transplant, then it's already letting me down gently so I can't say to them, 'but you led me to believe' etc.
It's as I already knew from being told a million times, that it could all come to nothing until they are sewing the new lungs up inside me and even then things could still go wrong.
Still, the sun is shining and it has been really hot outside today. Sam and I met up for lunch in a rather nice pub garden and we talked non-stop for three hours. The man sitting behind us must have thought 'no wonder she needs oxygen!'
We worked closely together for eleven years and never ran out of things to talk about on a daily basis, so now just think how much we've saved up in between visits!
Our insane chats kept us sane for all those years.
It is suppose to be lovely right through the weekend to next week, but then the news was talking about snow some time in October, now that is insane!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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