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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 9 September 2011

English Channel this way

Yesterday I was really tired from pushing myself too hard, so what did I do today? Went swimming and then off to rehab of course, as you do.
I am now so tired that the words on this page are jiggling about in front of my eyes, but it's a contented tiredness I suppose, in the fact that I have achieved something, well apart from cramp in my toes when swimming and aching joints now.

Firstly, I swam ten lengths. I know I did this time, as Jean was counting them as well for me.
I brought myself a woggle from the reception at the pool, so I could use my arms more and build on my upper body strength and it did help me get the movement going in my arms, especially when on my back.
I was actually motoring at one point, believe it or not.
For a few minutes when we arrived I was quite pleased that I had paid to get in and brought my woggle all for £8.60, till I remembered from last Saturday that the woggle a fiver, which meant that the young girl thought I was a pensioner!

After swimming, we went off to have a bowl of soup before going on rehab, and although I felt stronger, I was definitely slower. My upper arms are now killing me!
I like to try and better my score each time I go and I wasn't as good today as I was on Monday and I was coughing a fair bit too, which was annoying.
The after exercise talk was on Non Invasive Ventilation (NIV). It was quite interesting and we got to try on the mask and try out the ventilator on a low speed, which I found a bit like being in a wind tunnel. It forces the air into your lungs and knocks out the carbon dioxide, which we have trouble shifting.
As I am like most people with a respiratory disease, I mostly breathe in and out through my mouth, rather than my nose and I felt I looked a bit like Wallace or Wendeline, the characters from Wallace and Grommit, where it was blowing my mouth wide open.
I can't say that was the best experience I've had.

Ann and I went for a meal at Lynn's tonight in Suffolk, which was what I needed after finding out that the carers agency that was looking after mother, can no longer help as mother's carer has moved. More phone calls to make on Monday!
Lynn provided us with a very nice meal and it was very nice to feel full for longer than thirty minutes!
I know that Lynn had made a real effect to make sure the meal was made from my slimmers cookery book, but I really worry as I sit here with a big fat belly, that come Monday the scales will say that I've gained rather than lost.
With the cherry pie last night and the huge plateful of food tonight, I will be very surprised if I've gone down.
Never mind, I have all weekend to lose.

Lots of love Debbie x

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