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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 24 July 2011

Busy, busy, busy

Keep busy at all costs, that is the order of the day and I have done my best to keep busy believe me.
Thank goodness it's only one more sleep to Papworth and I use this term loosely, because I am so tired from not sleeping properly through the night.
Every night for the last five, I have laid there imagining what they are going to say to me tomorrow and before that, I couldn't sleep because of the antibiotics.
I have twisted and turned so many times, that it's a wonder I haven't strangled myself with my oxygen tubing which has been wrapped around my neck once too often.
I worry about what the worst outcome can be tomorrow and how will I handle it? Then I started thinking too of what happens next if I do hit it lucky tomorrow and then my brain starts racing all over again. And what happens if I go and don't actually learn anything tomorrow and be told that they will let me know?
I really do need my sleep, because without it I then turn into a right temperamental, paranoid and grumpy woman.

When I am worried, it costs me. I have to feel good when I'm like this, so I spend. Today I wasn't actually too bad thankfully, as we went to the 'Vintage Fair' at Cressing Temple and what I did buy... One print for the kitchen, a pair of turquoise blue leather gloves, a navy silk pair of gloves and a large silk scarf, all for £20... bonus, but before you say anything, obviously not real silk for that money! I can live with that though.
There was really beautiful things to buy and really beautiful people walking around in 1950's clothes and although women were supposed to be more curvy then, they only had clothes in stick insect size luckily for my purse.
The sun that went missing for Matt's BBQ yesterday, did a guest appearance today and quite liked it so stayed out for the rest of the afternoon. We sat in this sunshine listening to 50's music, while we had tea from pretty mixed matched bone china cups and saucers and we could help ourselves to sugar from the bone china sugar bowl with silver sugar tongs no less, almost worth me taking sugar!
I curbed my enthusiasm to buy yet more pretty crockery, as I now have three cake stands and endless plates from charity shops and only a small kitchen.

After we returned I went round to my mothers and sat knitting my little babies jumper, just to keep my hands and brain busy, as mother wasn't actually very stimulating company, as she kept dozing in the armchair. Yesterday has taken it out of her, especially as she fell asleep when she got home and then couldn't sleep at night, bless her.
Time to go to the cinema, as I still had hours to fill and my friends thought I would self combust by bed time otherwise! Film good once I gave in and relaxed, and now I am wandering around the bungalow.
I have finished my book, this blogg is keeping me busy for a while, Face book next and then if I had silver, I would have probably cleaned it, so i'll do some more knitting.
Ooo my oven needs cleaning, must go!

Lots of love Debbie x

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