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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Friday, 15 July 2011

Rant time... spiders beware

I feel ick.
Sorry, but I am going to rant today, as if I don't start sleeping properly soon, all my rational thinking of not letting my insomnia get the better of me will be replaced by the bitch from hell school of thinking!
I can't even work out myself how I feel today, apart from feeling in the words of a child... ick. My restless leg syndrome has upped a notch and instead of just annoying me at night, my legs have been driving me potty all day. It's the backs of my legs that are suffering and they feel shivery all the time too...why?
I've been on my oxygen nearly all day as I've had the energy of a 10 watt bulb, plus headaches, alternative hot and cold flushes and an upset stomach.

I had a massage booked for 11am to try and sort out my aches and pains and as I had spent my cash at a handbag party last night, I had to go to the hole in the wall and get some more.
There I met three people, one after the other who were full of doom and gloom, bit like myself now, but I blame them for putting me in this mood in the first place.
The first prophet of doom's conversation went on the lines of 'Oh you are still holding on then, as my friend has just died.'
Well that is what you call an opening chat up line! I said on these lines that I was sorry to hear that and hoped that he didn't have the same disease as me and that I wasn't going to die just yet, but with a bit more sarcasm thrown in, which went right over his head which incidentally was the only thing that did cover his head, the baldy git... Sorry being childish now.

Next I met an old school chum, who went on to tell me that his friend was far worse than me, as he never left his house. I apologised for the fact that I dragged my butt out everyday even when I felt like death warmed up, just to keep myself motivated and fit. And he had the audacity to look shocked by my reply and hello, would I be on this list if I didn't need a transplant.
I may smile a lot, but I do feel crap most the time damn it.
As I got in the car, the mother of the other woman in the village who apparently needs a transplant, glared at me. If her eyes could throw daggers, then I'd be dead now. Actually that might be helpful, as they could all say, 'Oo she was ill then!'
Well that's three people crossed off my Christmas list!

The joys of the massage were short lived, as I couldn't get warm when I got back.
I've also noticed that some of the surrounding fields of wheat or whatever are being cut, so my bungalow will be overrun will asylum seeking harvest spiders very soon. They are probably walking this way shouting 'sanctuary' as I type.
My mother had a wobble where I was 10mins late getting round hers and my pure white cardigan was driven over by my neighbour's car where I dropped it in the road on route to my mother's. Plus I feel as if something has died in my mouth again.
I'm going to bed so I can start a fresh all over again.
Rant over...sorry

Lots of love Debbie x

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