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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 23 July 2011

It be weird out there today

Well I do declare that today was a weird one!

First of all I accidentally got up this morning at the time my alarm actually was set for. Normally I let the alarm go off another twice before getting up, spaced at half an hour each repeat alarm, so I get another full hour in bed.
This morning I was up, drugged up and semi dressed or enough to walk around the kitchen to start the egg and cheese mixture for the filo pastry pie for Matt's BBQ today and had even stuck on a washing machine load on before I had noticed my error.
I thought at first we'd had a power cut in the night, but no, after checking phones and TV, I was up and had done lots things before 9.30.
Strewth I'll have to get up early again, as I felt quite virtuous.

Next was another weird one. We were at the BBQ and as the afternoon went on, the weather thought it was winter. I had taken a loose cardigan come wrap and a large pashmina to put on later, but had to wear all quite early on and I was still freezing. So I had to borrow a pair of Matt's carer's socks to wear.
I think Matt thought he was feeding the five thousand, as food per ratio was: two kebabs, two koftas, three burgers, two sausages and one huge pork chop per person, not to mention the rest of the food inside!
I did my bit, but I could only do one burger, half a pork chop and a slice of BBQ hallumoni cheese, so I failed miserably.
Where I was downing the hot tea to keep warm, my eldest sister was downing the Cava and is what I call a 'lovey' drunk as she goes about saying 'Now remember I really care about you a lot darling,' in a posh accent and cuddling people a lot too.
When you are stone cold sober, it can be either funny or a tad annoying, today because I was cold, I'm sorry to say it was leaning more towards the latter.

Mother wanted to go home as she was cold too, so we said our farewells and had another cuddling match from my sister in the garden, and made our way to the car, where lo and behold she had zoomed round to there too, so we had more cuddles from her where she was hanging through the car window. I guess looking back, I shouldn't have pressed the electric window button while she still had her head in the car.
Bad little sister.

After Ann called me and persuaded me to go to the cinema, we set off only to be told that the film showing was full. Crumbs that has never happened before. We could have waited 45mins and gone to the next one, but I had the hump by then.
So as they only had wine or beer in the cinema bar, we ended up opposite in the bowling alley having a drink and then game of ten pin bowling.
Yes, you read that right.
With my oxygen pack on my back and without the aid of the gadget shaped like a roller coaster for bowling balls... apparently it helps you to play without lifting and swinging the bowls about... I played... slowly... but I played.
We then went and spent a £1 each in the penny arcade...which is now the 10 penny arcade... and it was great fun. I won a strip of tickets, which I had no idea what you did with them, so I gave to a little boy who had a hand full of them. He was delighted and explained to us, that you put them into a machine which tells you what prize behind the counter you could have. I think with the amount I gave him, he'd be lucky to get one of the staff's old chewed off fingernail!

So a weird day. A good day, but weird none the less.

Lots of love Debbie x

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