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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 21 July 2011

Jakatta anyone?

Would you Adam and Eve it?! Today it turns out I have thrush according to my latest sputum test, so I need more tablets.
Not sure where I have it, as I can't see it in my mouth as yet and it certainly isn't the other end, as I haven't the urge to go cycle riding to ease the itching!
And of course our branch of Boots hasn't got these tablets in again either. I'm not sure whether they hate me or just like my company, but I nearly always have to go back twice.
It's not a matter of life or death that I take them tonight, so I decided against driving across Essex to find them in another branch, and thought I could just pop down tomorrow and start them then.
So tonight, I'm having a nice long brandy and lemonade, as tomorrow I will be on the wagon yet again.

Strange day out there today, as damp and grey, but really warm. I sincerely doubt that I will ever get my paddling pool out at this rate.
Although where I have been sitting out in the garden, I have got a lovely colour and people keep saying that I look well... well then they start spluttering and add, considering!
Lynn goes off to Turkey tomorrow on the 10am flight which used to be the one Julie and myself used to go off on in the early days.
Gosh I'm so envious of them and really wish I could join them. It seems so long since I have been able to go, in fact it must be three years ago now and every time I speak to someone, they are either going out or just come back. Bless Julie, she keeps telling me to hang on there and it will be worth the wait when I get there again.
When I was talking to the ladies yesterday, I told them that it was visioning me in the sea at Oludeniz, looking up at the mountains, feeling the water around me and the sun on my face that gets me through anything horrible or scary at the hospital nowadays.
I suppose that the holistic name for this meditating is NLP or neuro linguistic programming. For me it works.

I learnt this on one of our more productive training days at work and although some of the hands on work shops were a bit too airy fairy for me, but I am glad I learnt this as this one really works for me.
The tutor asks you to think of a time in your life when you were really happy or peaceful and for me it's standing in the sea at Oludeniz watching the clouds go by with their shadows on the mountains.
The tutor says you need to do something simple to transport yourself into your happy place and for me it's moving my hands slowly besides me, like moving them in hip height sea water and to tilt my face upwards to feel the sun and it's heat. So easy and so effective, it's got me through a lot of horrible moments in my life.
I also have a particular piece of music that triggers off my happy place too and it's called 'American dream' by Jakatta. Also there is another version called 'Any other name,' one faster than the other, but to me both beautiful pieces of music and I've spent many a happy hour listening to them and guaranteed to put a smile on my face.
If, when I have my transplant, if they let you have music played when they put you under, these will be the pieces that I will ask for.
Ooo I think I must go off and listen to them both now and chill with my brandy.

Lots of love Debbie x

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