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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Wednesday, 6 July 2011

Ssssh legs, I need my sleep

Goodness me, I was living up to the sign in my front door today.
'Beware grumpy old woman!'
First thing this morning, you definitely had to beware of me as I had very little sleep last night, in fact I refused to get up until 10am.
The body was willing to sleep even before lights out last night, but my thighs had other ideas and wanted to party all night doing what seemed to be the conga with the way they kept jumping about.
I had them under the duvet, then on top of the duvet, over the side of the bed and then near enough sitting on them to cramp them into submission. I tried walking around the bedroom and then standing on a cold floor in the bathroom for ages, but nothing would lull them to sleep.
I think in the end I must have just flaked out as I woke up spread eagled across the bed.

Tiredness makes me clumsy and I must have trod on or caught my oxygen tubes on things or around things about 100 times in the first hour of being awake. I swear because of the deep grove I'm getting between my head and my ears, I will have ears that stick out like a pixie by the time I die! And I'm so hungry. I want to eat, but I feel sick when I try, at least I've lost a whole lb since yesterday so every cloud has a silver lining and all that.

Mother seemed really pleased with Carla, the new foot lady and she got rid of the nasty corn that was growing under her nail and protruding out the top, no problem at all.
It's days like this that mother can be really charming and lovely, and you can see how alert she can be. I don't think she repeated anything today apart from forgetting that I had just phoned her when I got back from St Pete's and she had phoned me again to see how I was.
I had phoned to say that I wouldn't be back round again that night, as I had a headache to end all headaches after being beaten like a pinata at a rather boisterous child's party. Only instead of sweets spilling out, it was very loose phlegm thanks to the Erdostein.
Coo can you imagine that at a childs party!?
Vera was my pummeler today and as we always giggle a lot, it has the effect of rather speeding up the phlegm production. Plus that fact she is one of many physios that finds pummeling me a great way of distressing, so it's just as well I prefer and can handle a good bashing... always happy to help out girls!

So an overall summary of today. Feeling better apart from the nausea from the tablets, the tiredness from the twitching legs, probably from the tablets again and the odd feeling of paranoia. That has got to come from the tablets surely!?
I've not had that feeling as intense before. If I passed a car on the road, I was worried it might come too close to me and I actually jumped when I passed a car driving slowly towards the road on it's drive way. I knew it would stop as the driver was smiling at me, or was it a bemused look at the one of fear on my face? Also If I heard a creaking sound in my bungalow, which normally sounds like the Marie Celeste at the best of times with all the doors and windows open, but today I got totally freaked out and started checking rooms.
Lordy I need a lie down, but please keep the partying to a minimum legs!

Lots of love Debbie x

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