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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 7 July 2011

Winds of change?

Talk about things that go bump in the night and no it wasn't me staggering around in the dark again with my restless legs.
The wind had got up again so strongly through the night that my half erected shed, started falling apart and what was left standing was banging in to each other like a giant garden wind chime!
Weirdly enough I sleep through it.
For those who have been reading my blog for a while now, will remember that it's coming up to Oliver and Reni's first wedding anniversary and this time last year I was having nightmares about the mini marquee in my garden taking off in the strong winds and ending up in the next village.
After a cry for help, Greta's husband came round and took it down before any further damage was done to my poor little shed.
Even if I was able to bend and stretch, I still wouldn't be able to do anything as I don't know one end of screwdriver from the other.
I feel totally useless at times and that sucks.

I had to wait in today as I was being inspected, correction my bungalow was being inspected.
For the past two years I have lived in community housing and as reported on the news, there has been a lot of dodgy dealings in the inner cities with people subletting at extorted rates. I guess they are doing a check to make sure you are who you are supposed be, even though we live in a little village. Unfortunately for me though, I had to convince her that there wasn't a Mr D Burden, but only me; Ms D Burden. I showed her my signed tenancy agreement, National Insurance number and driving licence etc, explained that I had reported the mistake when I received her letter advising my about inspection and she still looked at me as if it was my mistake even though every other piece of communication from them said Ms D Burden.
Hello... your typo error my dear and worse, she didn't say once 'Ooo you've got a lovely bungalow!'
I happen to be very proud of my little home.
Then we had to walk over to sort out my mother's bungalow inspection. That was fun, as she couldn't understand a word that the woman said and my sister has all mother's paperwork at her house, so I was dashing around trying to sort out anything I could to prove that this little 93 year lady was indeed the tenant that had lived there for the past 20 odd years and not some alien family.
Mother was fast losing patience with the fact that she couldn't even hear what the lady was saying let alone understand her and then she knocked a full glass of juice flying when trying to find her glasses. I can think of better ways to spend an afternoon.

Still health wise I felt a lot better again and even got my appetite back enough to eat my evening meal and to enjoy it and not feel iffy at all during or after eating it. A lot of ands but all very important ands!
Hoorah that's a really good sign!
One step closer to feeling better for my goal, being well so I can go to Papworth with a clear head, because as you can tell; I talk a lot of gobbledygook when I'm feeling under the weather.
I am so worried that I will screw up when they question me, especially when they try to see if I am balanced mentally. Lordy I just know I will fail that one.
Yay only 17 sleeps now... but this is as nerve racking as being a child at Christmas! I can remember every year thinking have I been good enough to get the present that I had asked for. I always had doubts that maybe I didn't deserve that present and I would get a 'must try better' note which is what I always got stamped on my report at school.
What happens if they say 'not ill enough, come back next year' or 'too ill, so... reject'.
Hell I better change it and make it only 16 sleeps as no way will I sleep the night before on the 24th.
Ah well what will be will be and what ever the outcome, at least I will know where I stand. But that hasn't stopped me reading every horoscope in every magazine in the hope that they say 'Your life is about to change forever'

Lots of love Debbie x

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