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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 3 July 2011

What have I achieved?

I think perhaps the cheese has had a delayed reaction on my sleeping habits, as it was gone 2.30am before I actually went off to sleep and even then it came in fits and starts.
It wasn't because I was hot this time, as I had left my windows wide open before bedtime and the room was lovely and cool. I was even able to snuggle up under the duvet for at least ten minutes, but then I still rolled about the bed as restless as could be.

As you can imagine, I felt a tad knackered when I woke up this morning, but I had promised myself that I would go to the church family service at 11am and after a cool shower to revive myself as my body was on a go slow, I just got there by the skin of my teeth.
I thought that being a family service that I could say thank you for my all family being one again and to get a bit of divine inspiration about being more serene with my mother, instead of banging my head against the kitchen wall when she isn't looking!
It was a really sweet service with the Rainbows and Brownies attending, most of them the children of the children I knew when they were growing up.
The main topic of the service was 'Achievement' and we were all asked to think about what we had achieved.
Easy... I have brought up two fab boys. Not that I'm saying it has been an easy ride, far from it at times, but I am very proud of them and the men that they have turned into.
I have met and kept friends with a lot of wonderful people who I am very proud to call my friends. I think you have to earn the right to have good friends, so I must have achieved the right as I have THE best friends.
I have picked myself up after getting divorced from my husband of 29 years and remained good friends with him and still a little bit in love with him.
Overcome becoming bankrupt within six months of getting divorced and I've been in control of my finances ever since, be it with help and advice.
Of course facing up to this disease 75% of the time. Ok the other 25% causes me a few wobbles, but I am only human.
Getting over 4,000 hits on this blog! I am amazed that people all over the world are reading my page. Thank you so much and I hope it has helped anyone with a end stage lung disease or you are just enjoying reading it. Please, don't be shy and send me a message?
And I haven't strangled my mother, because I love her very, very much and even though she drives me to drink at times, I'm very proud to call her my mother.
So it was worth the rushing about to get there, as I felt quite warm inside when I left.

Luckily this feeling was still with me when I got to my mothers and there was no 'hello', but just a grumpy 'I thought you had fell asleep.'
Ok back to the kitchen wall head banging!
I think I had driven three miles before I felt safe to open my mouth and talk to her.
Still we got to Maldon with no fisty cuffs and we sat watching the river life again while eating our picnic. The river was really busy today as the tide was quite high and it was perfect for messing about on the water.
Once again, I got quite chilly and I am really hoping that I'm not going down with something else. I'm beginning to think that I really do need this change of drugs to kick start my resistance again. Please don't let me be ill when I'm suppose to be going to Papworth which incidentally is only 21 sleeps now. Perhaps I am getting myself worked up and this is why I feel rough and not sleeping well again?
Anyway off to bed soon.

Lots of love Debbie x

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