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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 5 July 2011

I'm getting warmer

Hoorah the socks are off! Still getting the odd shivers, but on the whole I'm feeling a whole lot better than yesterday. Just the headaches, aching limbs and tiredness to go and then I've cracked it. Then of course I've just got to sort out the nausea and stomach cramps from these new antibiotics and I'll be fighting fit!
Apparantly it is my dreaded staphylococcal yet again, so that explains a lot.

Had a busy morning seeing the medics. My local doctor first to talk about alternative statins to get my cholesterol levels down. The doctor reassured me that 5.1 wasn't anything to worry about too much, but agreed with my specialist that I need to present the best shape my body can be in to the Papworth doctors on the 25th.
The doctor gave me some tablets that I've seen at my mothers. Strange, I never did know what they were for and nor did she bless her. I found boxes of them last year at the back of her cupboard where she wouldn't take them!
Also I asked her for a diet sheet to help me try and see what I could cut out. Woe is me, as I have to cut out olives, Greek yoghurt and almonds to name but a few. I thought that they were all healthy foods? If they say I have to give up tomatoes, then I'll slit my throat now. The Greek yoghurt certainly aided my IBS caused by all the drugs that I take. Still I will do my best and try and avoid them like the sheet says... damn it!
She also is very keen on my mental state. Ha, if she had met me before, she would know that I've always been a bit on the odd side.

Next Ruth came round to see me and has given me a prescription for Erdosteine for the next 10 days instead of my usual Visclair. Hopefully the two new drugs together will give me a much needed boost to the system, unfortunately I will have to wait until tomorrow as the chemist has got to order them in especially for me. Ah well it isn't the end of the world.

My poor brother-in-law had drawn the short straw of erecting my garden shed as well today. He thought I was exaggerating that it would take at least four hours to erect. The fact that it was red hot out there today in my back garden and we had taken the gazebo down to make way for the shed, so there was no cover and plus the instructions were in French, didn't make for a fun day for him. Plus the back ground noise of me having physio and coughing my lungs up while he was working, was a bit stomach churning for even ex double hard coppers!
I did my best to keep him fed and watered, but after fixing the roof and two sides, he had to call it a day and to come back with reinforcements at the weekend.

Lots of love Debbie x

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