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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 4 July 2011

Infection mark 2

I did get a slight hint that there was something amiss last night when I went to bed wearing woolly socks in July and lay there shivering!
Yay, I have another infection. No not yay at all, but Yah boo sucks.
I've only had a couple of doses of my new antibiotics, which are Erythromycin this time and my goodness me, they make you feel quite queasy.
This is going to be a fun week I can see.

I had to take mother to see the nurse at lunchtime and luckily her blood test results have come back negative so she hasn't got diabetes. I am so pleased as I really didn't know how that was going to pan out.
Also I thought we had a breakthrough today, as my mother's favourite nurse gave her a little talk about having some extra help in just for the mornings, getting her up and helping her to take her showers, getting her breakfast etc as that is when she is most wobbly.
She was very tactful and said that we all know that she wants to remain independent, but having a hours help twice a week will help take off some worry from me and she can remain independent in her bungalow. I did think that she took it all on board, but when my sister quizzed her tonight, the lips were firmly closed on that subject.
Ah well back to the drawing board, but we do have another visit to the nurse again next week yet so fingers crossed that she might surrender.

I don't believe how cold I keep feeling today and then when I add a cardigan, I go and have a hot sweat! Damn it this infection is a bit unpredictable. It's another 'Staf' infection and I've had it before. It's not very pleasant if my memory serves me well.
I drove Julie to the hospital to have her hormone replacement done this afternoon and I was freezing sitting in the air con waiting room while everyone else were complaining they were hot... I wish!
After I dropped Julie off at home, I just wanted to sleep for England, but every time I tried, I started coughing this raspy dry cough, till eventually I coughed something away. Hardly the recipe for a restful nap!
I have some more drugs coming tomorrow so hopefully they will get things loosened on the old chest front and I'll settle into a routine again.
I got to see the doctor and the head physio tomorrow, well after all they would be so bored without me!
So early to bed tonight. I must go and search out my patchwork quilt and fleecy pjs!

Lots of love Debbie x

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