A better start to the mornings proceedings today. Mother was still laying in bed when I went round to hers to meet the lady from the 'Enablement' team, so I had to chivvy her along and make her breakfast and some for myself too before the lady arrived.
I must say I was impressed with her and her worker. I felt a little remorse for moaning at her yesterday and even mother was quite amicable with them, though how long that will last I'm not sure, especially when they said they'd be coming round every day for six weeks. I did notice that mother's hearing had suddenly got better at that point and she mouthed 'six weeks' at me with a grimace!
I guess I won't be flavour of the month at the end of it!
The rest of the day I took it easy, as my throat was still feeling scratchy and my tummy felt a bit upset from having to swallow the ointment gel. In fact I felt quite nauseous through out the day.
Still I'll live.
Papworth returned my call today and advised me that they had received the paperwork from Broomfield re my reflux examination, but no paperwork from my doctors as yet. Perhaps I should have bit the bullet yesterday and asked her when I was in her surgery room?
They also said that they were still sorting out my anti bodies so they'd know how to treat me afterwards, but asked if I was all packed ready, as they would phone me as soon as I was on the national register which wouldn't be long.
She sounded really excited and that did rub off on to me a bit again, although I do get very warm every time I think about it.
This call came as I was driving to have my physio done at St Pete's, so I was able to fill in my team here with an update too.
I explained why it had been suggested that I should have a double lung and heart transplant after all, which is so I could donate my heart to an 'O' blood group recipient and get them off the list too.
I told her that it feels like I'm going to a rather bizarre bring and buy sale!
Tracey knew some of the team at Papworth, which somehow made me feel more at ease and a bit more at home about it all. Like having a kind of safety thread running between me, my team and Papworth, if that makes any sense? Probably not, because it doesn't make a whole lot of sense to me even!
Julie has booked us all tickets to go to the Halloween special at Cressing Temple. It is a maze that you have to walk through and get scared witless by strange people in costumes. I have been to a couple similar when I was fitter.
One in the Trocadero in London, which was called the 'Alien Experience' which was based on the Alien films that were very in about twenty years ago. I went to with both my sons as we were all big fans of the films and by the time we came out of a side door onto the street, we were so hyped up that we really thought an alien was after us!
The second time was at Madam Tussuad's when Reni's family came over to stay and we did the sights of London with them. This one held there, was based on the streets of London around Jack the Ripper period. Some actor chap came up behind me and started smelling my hair and I swear I nearly wet myself there and then with fear as that was so freaky!
Mind you I was equally as freaked when Reni, her mum and myself got talked into doing a Bollywood dance with some dancers there. All went well until I went on stage and realised that Reni and Ana had sneaked back into the audience watching little old me all alone with this dance troop!
So lets see what lies ahead of me that night. At least I know my heart is strong so I'm unlikely to have a heart attack there!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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