Every time my mobile rang today, my heart literally stopped, which wouldn't be helpful for the person having mine! I didn't know whether it would be this Friday or next that my name goes on the active list.
But as there were no calls from Papworth, I guess that they haven't rubber stamped the the forms yet. I have this fear that they will ring up and say 'you fraud, no way are you going on the list!' but as I was more surprised than them about my shelf life, I don't think that will happen.
So... the day was spent playing catch up and sorting out my hospital bag. I had my list of things from the coordinator to take in and they were the obvious like a nightie, dressing gown and slippers, but I had to sort out a new bra.
I have to take non wired support bras for after the transplant, as I will have to wear them non stop afterwards to stop my breasts dragging the scar apart if they are hanging free and loose.
Even mine that look like spaniel dogs ears could be a risk for my scar!
Since I have lost weight, I have gone down two cup sizes...bummer.
There are three types of cuts:
1. The way straight down your chest, which will probably be the cut of choice if I have the heart and double lung transplant.
2. The cut under your natural boob line... which could leave me looking like... if I lay on the beach topless... like someone who needs their money back after having a very bad boob job done!
or 3. The surgeon who I met, his new state of the ark cut, where he does two small vertical cuts, one under each breast. He feels that this cut is less intrusive and if I just get lungs then this will be the cut.
The other pieces on my shopping list was a phone holder on a strap for round the neck or wearing it so I could have it attached to my trousers or other garments. I need to be able to get to it easily and more importantly to hear it or feel it buzzing if on silence! I spend ages rumaging around in my handbag when it rings normally.
Also a new tooth brush and toothpaste. And a simple liquid soap which won't bring my under arms up in a rash like the ultra rich face wash that I took with me on Monday. I thought that if I diluted it enough, I could multi task it and use it for under my arms and to wash 'my bits' with it. I now have one very sore armpit and a tender bottom! You live and you learn, in my case the hard way.
Still very tired today. Julie said that it all caught up with her and hit her hard last night and she sat howling her eyes out while watching 'Big Brother' when Mark left the house!
I still feel matter of fact about all the information that I was given, but is this the calm before the storm I wonder?
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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