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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 8 October 2011

One very tired and cold bunny

The assessment hangover is still hanging over my head like a huge cloud at the moment, as I feel like someone has removed my batteries and all my energy has fizzled out.
It's lovely having so many people rooting for you, but at the same time it's hard work when you have to pretend to each one that you are all matter of fact and in control of what you have in store, because if you show a flicker of a tear, which is want I have really wanted to do a couple of times since I've been home, you know that the tears will flow from them too and I'd end up comforting them.

Today I was really tired when I woke up and I had a much needed massage booked to get rid of the knots in my back, because there were quite a few to say the least. I could have quite easily fell asleep on her treatment couch, but I had promised the girls that they could push me around Cressing Temple's food show today.
It was a touch and go moment when I could have easily stayed indoors and slept.
I had to be pushed today as a) it was suddenly so cold and b) it was windy and not having much energy, this made matters worse getting around. I had to lean on Julie quite a few times when we couldn't take the wheelchair into the barns and having the oxyge pack on my back, meant that I got pushed and pulled quite a lot.
I was amazed when I went to sit down and catch my breath in one of the barns, that some man said that I couldn't sit there as the seats were taken! Five minutes later four healthy specimens of adults came and sat down next to him. Gits! A very nice gentleman came to my aid and let me sit with him instead on another table.
When I got home, my feet and hands were like ice and I had to turn on my heating for the first time this season which was very scary. People never cease to amaze me I'm afraid.
Strange how already I had forgotten how well I felt last week and how worn out I felt this weekend, but as I said before, this week has been an emotional roller coaster for me.

We had decided to go to the village quiz for tonight's entertainment and it was great fun, but very hard. Julie said that she could hear that I was struggling with my breathing as I was making no sense at times where I was so tired. Still we came 6th out of twelve teams, so we didn't do too bad, goodness knows how though as some of our answers were really rather cheeky. We must have had moments of pure genius at times maybe? Good to know that old grey matter isn't completely dead yet.

Be glad to get to bed tonight and a lie in is in order for tomorrow I believe.
Good night all.

Lots of love Debbie x

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