About Me

My photo
I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 2 October 2011

Bags packed

Sorry about yesterday's woe is me.
Today I'm nearly back to normal which is bloody amazing considering I couldn't get to sleep until 4.30am with my brain whirring away and I did feel a bit tearful first thing, but a day with my mother in the sunshine and watching the river life at Maldon has done it's magic for me again.
I still feel a bit like a rabbit caught in the head lights, but it's shite or bust now isn't it? I've waited a long while for this assessment and I know where the wobbles came from for me yesterday.
It's because I've felt so well since meeting the Papworth team, that I've forgotten how ill I was earlier this year and that I've got an end stage lung disease which is never going to get better. I've forgotten that one bad infection or even the sort of infection that is mild to most normal people, but totally floors me and I'd be straight back to square one again or maybe worse. Each infection takes it's toll on your body.

So onwards and upwards as they say. Besides if I went into this without a few doubts, then that would worry them into thinking that I wasn't taking it seriously.
So I've had what could be my last glass of Pimms for a very long while and my suitcase is packed apart from the last minute bits i.e toothbrush etc.
So a short and sweet blog page tonight and I'll catch up with you on Wednesday.
I know now what I should wish for and that a new pair of working lungs to make me work normally again.
Simple as.
Wish me luck.

Lots of love Debbie x

No comments:

Post a Comment