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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Tuesday, 18 October 2011

I surrender

I had to admit defeat today and call off the 'Enablement Team' for mother, as having all these strangers going round was really beginning to freak her out. When I spoke to them on the telephone first thing, they said that they would still have to go round to sign her off, but I thought it best that I stayed away and let mother talk openly to them.
She was getting up early poor thing and washing and dressing, so they wouldn't make her do in front of them, so it really was defeating the object. My mother is a very proud lady.
After going round a couple of times yesterday and each time watching her looking for a piece of paper that she had written on, I got quite worried that the stress was pushing her close to the edge.
Naturally her social worker rang up with 'good news' that he had managed to get her a place in a day centre, which is what she wanted a couple of weeks ago. Now it was a case of wrong place, wrong time for that as mother would have thought that there was some conspiracy plan against her, so I said I'd let him know on Friday. But I think the answer will be that she's had one too many changes this last couple of weeks, so maybe wait a while. I do not want to be the one who puts mother over the edge!

I had rehab today after seeing an old friend for lunch at hers, which was very nice indeed to catch up as we were quite close many years ago.
Glad we had eaten early though, as when I got to rehab I had two members of the team peering at my phlegm to see what colour it was this week. I had caused some concern last Wednesday as my nose was really blocked, I felt washed out and my phlegm was a gross colour of green. Yuk! I'm happy to report that this week it's still green, but a lot paler green.
Blimey I thought my old job was tough!
My stats were quite low though and I had a storming headache by the time they had finished pummelling me, so after my evening meal I did catch a few Zzzs.
The weather although bright today was quite chilly and the combination of being beaten up, a lovely mock roast chicken dinner and my central heating being switched on for a while, just had me curling up on the sofa for a nap.
I might actually get my patchwork quilt that my sister made for me out from the airing cupboard where it was stored for the summer and put it back on the bottom of the bed again, just because my feet were freezing at first last night in bed.

Been reading more of my paperwork from Papworth today and found a piece in there that I couldn't remember talking about at the assessment and that was when I'm released from the ward, but before I go home, I have to stay in a flat that they provide so I'm close at hand for blood tests and to show that I'm coping.
When mother was asking how long I'd be in hospital, she was dismayed when I said up to three weeks, how she'll cope with that news is any one's guess. I think reading the paperwork, I'm looking at a 4- 5 week stay all in all. Blimey. More things to panic about! I'll get someone else to read it and see what their understanding is of it, but there's no point worrying, because it has to be done and that's final.
Having this lack of energy and quite strong winds to battle against, only re-enforced to me just how wonderful it will be to be able to stride out normally again.
That day will come.

Lots of love Debbie x

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