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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 23 October 2011

The busy season

I have returned! Have you missed me?
I've been a busy little beaver trying to sort all manner of things out these last couple of days and I thought you'd be bored rigid listening to me bleating on about social workers etc.

I spoke to Papworth on Friday afternoon, after I had nearly chewed down my finger nails to the quicks as I hadn't heard from them. Oliver, my wise son, told me just to bite the bullet and call them if I couldn't remember what the coordinator had said the previous week.
To be truthful, I was driving when they called me and before anyone reprimands me for talking on a mobile whilst driving, I was on speaker phone! But I had gone into a bit of panic mode, where instructions were going in one ear, but not hanging about and escaping through the other.
This coordinator I had spoken to originally, so I was a bit calmer when she was telling me what was happening.
Apparently, they quadruple check every detail and there was one person still left to check, so her advice was to use this time to tie up all loose ends because it will be this week coming that I go active.
So that is what I have been doing. I've been finishing off goodbye letters to my sons and other people who are close to me, just in case I join the percentage that don't make it through the operation. I've been trying to work out what bills have to be paid by me direct. Sort out my mother's social worker to make sure that they don't cart her off to a home while I'm in hospital and then sort out how I want my funeral... just in case.

I've still got a couple of letters to write, but my boys are finished and it wasn't too sad writing them as I was trying to make them laugh when reading them. Writing 'good bye' at the end though did rather crumple me, but I needed to get them written and sent to Derek to print off.
My monthly bills that I pay by phone are all sorted and the rest I pay by direct debit. I do need to write down who is what service though.
Mother's social worker has closed the case as he couldn't promise me that they could keep her in her home and no way am I having her carted off against her will. I don't think he was very happy that he had done all this work and then I had pulled the plug, but my family will have to sort it all out and if it's six foot of snow and no one can get out to her, well then he said I could reopen the case.
My funeral, well that will have to be a sit down and jot everything down for a master plan. I'll tackle that tomorrow and ring up Collins the undertaker.
I know what I what. The cheapest box going as it's only going to be burnt or even a cupboard eco friendly one, that would be nice. The slow Jakatta song going in and the more funky version coming out. White flowers only. 'Make me a something of your love' sang in the middle...I'll have to find out the proper title. Knees up round Julie's... sorry angel, but you do the best parties! Ashes to be spread out, so a handful at Hastings out at sea with my dad, a handful overlooking the fields and church at Rivenhall and the rest to be sprinkled at Oludeniz in Turkey and around the neighbourhood. I've always been an awkward bugger so why stop being so now!
So if I don't get it written down properly, then my friends will know roughly what to do from this.
Simple!

I took mother back down to Maldon today and we stayed for ages, mainly as I met up with a friend and we had a good old natter. Then we watched the big boys, other known as men, who come racing their remote control yachts every week.
I couldn't help but wonder as I sat admiring the autumnal colours and blue skies, if like the seasons, was my life in it's autumn phase? You could make conparesions to me getting things ready rather like the farmer's getting their fields ploughed ready for their next seasons crops to grow and all the old leaves are dying off the trees rather like my body is shutting down.
And then winter could be when I have my transplant which will be when I'm resting and gathering strength while out for the count a bit like the season itself when it looks like it's sleeping under the snow, but all sorts of wonderous things are going on. Of course we'll have a jolly part in the middle where the transplant is a success and people celebrating a bit like the festivities at New Year, bringing me presents... hint hint! Then more resting thrown in with a bit of growing.
Then come spring, my new life will be forming just like the new buds and crops? Wouldn't that be wonderful if it did all happen like that?
Makes yoy think doesn't it? Or have I been taking too many drugs again!

Lots of love Debbie x

2 comments:

  1. Can't wait for the spring then, Burders!

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  2. Anonymous was me by the way - still sorting this commenting lark out!

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