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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 31 October 2011

Yay! Two sparkly stickers

A bit of a mixed bag today, which thankfully got slowly better as the day went on.
I had a text first thing from one of my friends who wanted me to turn on the TV and watch a programme called 'Helicopters Heroes'. There was a woman on the programme who was needing a lung transplant and the helicopter team had been sent out to get her to the hospital in time.
I switched on and watched feeling quite reassured that she wasn't throwing up from being air sick in the helicopter, but when they said that she had already had nine false starts on the way to the hospital and at the hospital from the organs either being not good enough or the organs being given away to someone else at the last moment, I was the one who felt sick.
How can I if it happens to me, put my sons through that anguish nine times?
Ok, we were warned that this could happen by the transplant team and it would be tough enough for me to bear it, but I am a believer that if it doesn't happen, then it's just not your turn. Blimey, they even warned us on the first day, that someone had actually been opened up once and then had to be stitched back up, because the organs weren't healthy enough in the end.
But it just wouldn't be fair to have my boys and Julie, drop everything in their lives to make the dash to the hospital that many times for nothing, after all it could threaten their jobs or they might have a make or break deal happening or something.
I have already told them that if they are doing something or have plans, then their lives must not put their lives on hold for me, but now I must sit down and tell them what I have just heard and somehow get them to agree.
It's hard, because I do want their beautiful faces to be the last thing I see when I go down to the operating theatre, but I think a phone will have to be enough now.
it's time to be realistic.

After that little shock and a lot of soul searching going on in my already mixed up head, the day went on and fortunately got better.
Tonight was Halloween, so Reni and I had made up some goody bags ready for the kiddies that Reni knew and had invited round. The first 'trick or treat' knock on the door was from a gorgeous little witch and I'm not sure what her brother was, as he was hiding behind her. I gaily gave them a bag full of sweets, little toys and a toffee apple, only to find out that they were a friend's children that we hadn't accounted for!
So after a bit of frantic juggling around with the sweets and toys in the remaining goody bags and raiding my cupboards to do a quick restock and we were up and running again with enough goodies for all. Phew... thank goodness for being on a diet and having lots of unwanted and forgotten yummy contraband hidden away in my cupboards. If things got really desperate and lots of unaccounted kiddies turning up, then they would have all gone home with pieces of friends holiday presents of Turkish Delight in their bags too!
As soon as the last ones arrived, I dashed off to 'tubby club' for my weekly weigh in and guess what? I've lost another 2.5lbs and received a fabulous boost, as I got 'slimmer of the month!' Yay!
I went home with two sparkly reward stickers, one for reaching (and passing my Club 10 target) and the second one which was extra sparkly, for slimmer of the month. Amazing how a sparkly sticker can have me smiling from ear to ear. Obviously I didn't get many gold stars as a child at school, especially as most of my teachers used to say on my school reports, that if I used my brain as much as I used my mouth, then I would be brilliant...Harsh me thinks!
Club 10, is the target that the club works out for you at the start of your slimming journey, as the weight you'll be after losing 10 per cent of your body weight. How fab is that!?

So a bad come a good day today, but I'm sure there will be plenty like that on this journey that I have signed up for. But I do know that when I unravel every now and again, my family and friends will be there to 'rah rah' me on...bless them.

Lots of love Debbie x

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