A bit of a rude wakening this morning and I know 8am isn't early for most people, hell I used to be sitting at work by 8am and sorting out all sorts of problems for the students not that long ago.
But now I'm entitled to a lie in.
Unfortunately no one told the lady from the Enablement team regarding my mother.
I don't know why I even bother giving information to people at times, as they never seem to listen. I had asked mother's new social worker to tell other people on his team to make sure that all first contact is with me and when making appointments to come and see her, as mother gets easily confused. And I know he actually wrote it down on her file, so someone wasn't paying attention when reading the file.
So of course what does the woman do, ring my mother before 8am to say she's coming round to see her in a couple of hours! Poor mother, was fast asleep...I take after her of course... and she hadn't a scooby do who this woman was, where she was from, or why she was coming and then had to get out of her bed quickly and go and get my phone number to give to her.
Why do we want the extra help when I go into hospital? Because she is wobbly first thing in the morning!
I refrained from calling the woman what I really wanted to call her and told her to come tomorrow as my mother was probably upset now and would not be at her best.
It's hard enough her having to come to terms of her youngest child having to have a major operation. A double lung and heart transplant too hard for her to comprehend so I try and play it down, but she gets upset having all these different people coming round as she knows the transplant is getting closer and it confuses her even more.
Later that morning I had a date with one of the local doctors to update her on the Papworth situation and to try to find out why my throat was still feeling scratchy after the last test at the local hospital.
Simple answer; I have thrush in my throat.
Probably where I'm not drinking as much water as I normally do especially after taking my inhalers and vent stream. It happens every now and again so it's no sweat.
I wasn't expecting to be told off though for not taking my statins even though she was going to take change them as that could be a side effect.
I explained that she told me to stop taking them if they gave me any troublesome, as did my specialist. In fact they all said that I was only marginally over the limit anyway and I could get it down by exercise and diet.
Err hello, I've lost over a stone and regularly swimming etc!
I didn't ask her if she had sent my smear results to Papworth as asked, as I got the distinct impression that her day wasn't going quite the way that she had hoped for when she woke up!
Take my gel, smile sweetly, promise never to do it again and go, I think was the best plan.
Not a bad day actually today, as sometimes you need something to fight for and mother was my cause. And sometimes you need to know when to bow out and try another day, and that was my doctors.
Spent a nice afternoon with mother playing scrabble. It helps to keep hers and my brain ticking over, plus it's getting cooler out outside now, so scrabble is a nice gentle way to past the time. Well until she cheats of course!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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