More of a blue sky day today thank heavens, as there was a touch of maudlin creeping over me yesterday.
I knew it wouldn't last long, but it's unsettling when I do get a 'what if' day. Thankfully they go as fast as they come, but I shall not beat myself up over them, as it's only natural to feel down sometimes.
Just as well it was a blue sky day in both senses of the word, as it was bally freezing out there today. Just goes to show how looks can be deceiving as from the safety of my warm sunny bedroom it looked a lovely and bright day out there, but outside the reality soon found me out, as the wind cut into you like little daggers.
Still, I wrapped up warm and took Reni into Chelmsford to do a spot of retail therapy.
Reni needed a new dress for a friends wedding and I needed a black t-shirt, although two other tops just happened to followed me home.
We had lunch, care of my lovely daughter-in-law and she was very proud of herself that we hardly hit anything today while she was pushing me about in my wheelchair. Reni is such a tiny little dot to push my humping great weight about.
I hate being a size 18, but even at physio today they were telling me that I'd soon lose my weight again once I had had the transplant.
This is music to my ears and not because I can buy smaller clothes, but as now they are talking about the transplant as if it's a real possibly and just a matter of time rather than just smiling when it's mentioned.
Tracy, who is in charge of the whole team gave me my beating today and she was very positive about it all. She was also concerned that my sputum was green again, but I explained it's always that colour nowadays, so we decided that it was the pseudomonas and until I get rid of these lungs, I'm never going to be clear of it.
I can not even begin to think what it would feel like to have lungs with no infections growing inside. No temperatures, no pain, just breathing in and out like normal people do. It's been so many years now that I haven't been breathless, even longer than when I was first diagnosed.
I can't wait. Bring on Friday as it's one step nearer a healthy normal life!
Lots of love Debbie x
About Me
- Me...Debbie Burden... or known as Burders
- I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!
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