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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Monday, 30 May 2011

For doubting Thomases

Poor old Derek was only back off his holiday for about three hours before I had my first disaster. I have managed for two weeks to keep myself out of trouble and he comes back and disaster strikes.
I knew that 'pre-thank you' DVD of 'The King's Speech' would come in handy before long and today I excelled myself and broke my front door.
I was out the front planting up some herbs and had left the front door on the snib to stop it locking me out, when a gust of wind slammed the door so hard it's a wonder it didn't smash the glass too.
Like an idiot in these windy days, I had also left the back door open and the gust had blown straight through my bungalow, nearly taking my front door off it's hinges and buckling the snib.
So embarrassing to have to call for help that quickly, but I now have a working lock again thanks to my hero.

Things didn't get a lot better as the day went on, as we decided to go to the cinema to see 'Hangover II' this afternoon and I wandered into the wrong auditorium first of all. Next I needed to go to the toilet before the film started and because my brain was a bit squiffy thanks to my oxygen levels being very low again, I kept repeating the screen number 2 to myself so not to make the same mistake on the way back.
I smiled at the young girl on the ticket desk and wanted to say that I was just popping out to the toilet, but unfortunately thanks to my brain being it a muddily, it came out that 'I was just popping out to go to number 2.'
Not sure who was more shocked by that statement!

So anyone out there that have the wrong impression about me and think that I spend my time going here, there and everywhere having fun; Well yes you're right. I do try to, because otherwise I'm giving in to this disease and that ain't going happen just yet.
But believe me, it's hard work just going to the cinema when it feels like you have an elephant sitting on your chest every time you walk and that you have to lean on your friend just to walk a few yards.
Try running like your live depends on it and when you are doubled up trying to get your breath back, that's how I feel when getting dressed in the morning, hanging out my washing, cooking or just doing whatever normal is.
If you laugh at a funny film with a mouthful of coffee, you dribble it out everywhere don't you, well that's me but bringing up a mouthful of phlegm and I envy one of you around me having a real belly laugh.
You know how embarrassing it is when you can't remember the persons name in front of you who you haven't seen for a while. I have that, but just forgetting words in every sentence I make or forgetting what I was saying in the first place. For years I thought that where I had coughed so much and so hard, that my brain had come off it's hinges!
So yes that is why I grab life and go for it and if you have any sense at all, you'd grab every moment too. Life is for living however crap the tools are that you are given to work with.

Lots of love Debbie x

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