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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 19 May 2011

Two meals no dashing

I didn't bother getting up early today, not that my normal 9.30am start to the day is early, but as I had to have my blood test for my cholesterol levels, I thought it would be better to avoid all food and cups of tea and stay in bed for as long as possible.
Actually missing breakfast is really easy as it takes me so long messing about while I do my drugs, taking my blood pressure and keying in the results and answering the questions into my docobo before I even think about breakfast anyway.
I know breakfast is supposed to be the most important meal of the day, but mine is more like... brunch, so I don't know whether that counts in the significant meal stakes?

I had a nice leisurely shower and got myself ready before tootling off to St Michael's just before midday to queue with the rest of the masses in Braintree for blood tests and actually I was cheerfully surprised. The screen in the waiting room showed number 87 and I was 98, plus there were three vampires, sorry blood takers working. Result!
After I had spent a penny and read a few pages of my new book, my number came up and the very nice man got my blood out on the first attempt. No moaning at me for having little veins and no bruising. Hopefully I'll get him again.

I was in such a good mood when I got back, that I felt ready to have a go at changing the sheets on my bed on my own and I potted up another four garden planters.
Yay I am a goddess! All be it a goddess that has to take a break after changing the pillow cases, another after changing the bottom sheet and a lie down after changing the duvet and then a rest on the kitchen floor before putting the dirty linen in the washing machine... god being a domestic goddess is a killer!
I do wish I could be like my mother and sleep in the same position all the way through the night and wake up with my bed looking barely crumpled.
Me; I roll about all night looking for a cool spot and wake up looking like a tornado has gone through my bedroom and tied me up in my oxygen tubes for good measure.
I don't know the difference between menopausal hot flushes and the lung disease night sweats, but if I say anything about my restless nights to my specialist, he does the 'strokey beard' look and gravely says 'ah yes the night sweats, common with a pseudomona' so he must know which is which?

A treat again tonight as I went out with the girls from Learning Support tonight to finally celebrate Emma leaving to go and work with the NHS. She left quite a while back, but she was ill the last time we were all meeting up, in fact we still all went to the comedy club without the main lady herself!
On a personal note, I was really pleased with myself as this was the second meal in a row and no sign at all of the Saturday bowels revolt, although I could see that the toilet in both restaurants were within dashing distance.
I suppose tomorrow it will be back to salads and a push to try and lose weight.

Lots of love Debbie x

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