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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 26 May 2011

Damp squids all round

Today it was trying it's best to rain, which is much needed by the farmers and I have to admit as someone who gets very tired watering my tubs, for all us gardeners too.
But alas apart from a few squally showers the day turned out to be a grey damp squid.
A bit how I felt really.

To be honest I did rather feel that my mother had hoodwinked me last night into taking her out today. So when I rang to say I was putting the pick up time back an hour because I wasn't firing on all cylinders today, I was pleased when she said she was resting on the bed too.
I'm ashamed to say that I didn't hang about when taking advantage of this information and cajoled her into agreeing it would be better to leave going out until tomorrow as originally planned.
As it turned out my brother and sister-in-law called round to see her and she would have missed out if we were sitting staring out through the car window and rain at some river somewhere, not exactly awe inspiring.

I honestly did feel very unmotivated and lethargic today and for most of the morning I just sat and read my book from the safety of my sofa. Mind you that wasn't a bad thing as I'd already had a telephone call from the Respiratory team first thing about my heart rate being high again on the 'Docobo' reading and I was told to rest up.
It's no good trying to explain this to mother, as she doesn't understand and I really don't want to worry her. But when I did eventually go to the shops and round to hers with all the toilet rolls etc that she desperately wanted, I found enough toilet rolls in her bathroom to service Liverpool Street station toilets for the day!
At that point I had a Reggie Perrin moment of imagining her wrapped up in them like an Egyptian mummy, only tied to the chair!

I went home feeling sorry for myself and crawled back onto the sofa with a cup of tea.
Tomorrow I hope I get my mojo back and that I feel less like a deflated balloon. After all it's Maldon again tomorrow for another picnic... whoopee. Saving grace is Reni is coming so hopefully it won't just be sitting inside a car eating sandwiches, but we may venture out and eat our sandwiches by the river.
Goodness I'm a miserable sod today... so sorry.

Lots of love Debbie x

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