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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 14 May 2011

Excuse me.. out my way

Well I felt pretty grim when I went to bed last night. I had burning hot skin, especially my face which was bright red, but I was freezing cold and had to snuggle up under the duvet.
Believe me that's an all time first, as I'm usually as hot as hell in bed and I'm not talking about my sex life, I think hell will freeze over before I strike lucky again!
Anyway, it seemed I had every right to feel grim as it transpired.

I felt okish when I woke up, a bit weary and running a marathon wouldn't be in my top ten favourite things to do, but that's the norm for me. I got showered and dressed, but I changed my clothes I don't know how many times as I was going out for lunch with Sam and Jean, but I couldn't seem to get warm and nothing looked right on me, even all my new outfits.
We got to the restaurant, a personal favourite of mine that Sam really wanted to try, The Pattiswick Compasses where Oliver and Reni had their wedding and before I had even got out the car, I had griping pains in my stomach that had come from nowhere.
Seems that the lower back pains that I was suffering with since Wednesday, which I suspect was constipation thanks to last Friday, had decided to do something about curing it's self and oh boy did it.
I was back and forward to the toilet nonstop.

I hate it when that happens, as I'm sure everyone in the restaurant is counting how many times you go. Especially the ones sitting on route to the toilets, which by now seem at least a mile walk.
I know I would have made a comment to my friends by now if I was watching somebody frequenting the toilets as much as I was.
I just wanted to sit and chat to the girls, but I couldn't relax because I was waiting for the next lot of griping pains and that dread that I might not make it to the toilet in time.

The discharge notes from the hospital said that you would have a day up to 10 days afterwards, when your face could swell or come out in a hot rash which was what happened last night and that you must pass the dye via urinating (no problem as I drink enough water for the whole of Great Britain)and excreting. Now that movement I've been too frighten to do properly in case I popped my cap in my artery when I pushed and this was the result... hello , it's now bursting point and I've now a bum on fire!

My punishment for not realising that I had a problem, was to have to stay in tonight feeling awful, laying on the sofa and watching the 'Eurovision' competition while feeling sorry for myself and 'Blue' as they didn't do as well as they should have, but hey we all know the voting is rigged.
My back no longer hurts... bonus and thanks to a bath, my bum has cooled down too.
Hopefully some good has come from it and that I have lost some weight, now that would be lovely.

I think time for bed now with a cup of chamomile and a huge dose of self pity!

Lots of love Debbie x

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