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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 28 May 2011

Tickets please for the treadmill

And I have reason to believe that I'm back on the monotonous treadmill of chest infections.
The evidence; repeat pattern of headaches, extreme tiredness, extra phlegm in a familiar hue of green, they have all presented themselves, but the jury i.e. the respiratory team have a skeleton staff at the office for advice over the weekend, but wouldn't really be able to do anything without a sample.
I will probably get a rollicking for this, but as I had some unopened antibiotics in my medicine chest, I have starting taking them.
The local doctor gave them to me when I had the infection in my nose and eyes, and to take if I thought it was getting worse and spreading into my sinsuses over the Easter holidays. And in my defence, they are sore again so I thought that the Amoxicilin just might take the edge off my chest as well before anything takes hold.
A executive decision.

I had to do something, as I am due to see my specialist on the 8th June and there is no way on earth I am missing that appointment, because I need to know what the hell is going on with my referral to Papworth.
If I'm not well enough to go in to see him, and he sure as hell doesn't do house calls, it could be weeks before I get to see him again and I need answers and I need them now please.
The sentence that he said to me about only having a two year window to do the transplant has engraved it's self into mind. God I hate that term... a window... because all I can see now is a bloody great big egg timer with the sand flowing through it too quickly for my liking and I'm now down to one year and nine months. All that celebrating and hugging in his office has all fizzled down to nothing.

Not only am I waiting for that letter, I appear to be waiting for my payment slip for my pension to arrive too as this month nothing has been paid in.
I had really odd amounts of payments from the benefit people last month, and as they were still trying to make up their minds just how much I'm supposed to be getting, I thought they must be back payments and now this month, nothing from them either.
Is this a conspiracy plan between the NHS and the government to worry me to death so they won't have to do the transplant and then save money? If it is then they are doing a good job on me!
Please if I promise to be good and bite my tongue with mother and go to bed at a reasonable time, can something just be straight forward in my life for once?

Lots of love Debbie x

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