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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 1 May 2011

Hot tubs and fashion blunders

Ooo the hot tub last night worked like a charm and I slept like a log. Bliss.
I think I could get addicted to one of those if I had one in my garden.
I'll have to keep my eyes open for any competitions with one of those as a prize, as I could just see the girls and myself in it on a Friday night and in fact every night with a Y in it!

I took mother for our picnic down at Maldon and it was packed. It certainly has grown in popularity since they have spent a lot of money on revamping it a couple of years ago.
The car park was full, which is the only thing you pay for and now the water park has been switched on for the summer with even a few brave souls playing under the water pipes, but once again the pirate ship was attracting greatest number of crowds.
So different from when my mother and dad used to take us down for a swim in the lake, a toffee apple if we were good and a ride on the miniature railway.
And still very different from when we used take our boys with them bouncing on the trampolines, playing on the mini dodgems, an ice cream and yes, the miniature railway was still there and they loved it too.
The railway has gone now, but I can't wait to take the next generation down whenever they arrive to try out the delights of the pirate ship and the water park.

I had the girls and Derek around for a make shift dinner of whatever was left in the fridge tonight and to drink some of the wine that was left over.
It was all very pleasant sitting in the garden eating and drinking. A bit nippy, but still warmer than the Royal wedding day, by god that was cold once the sun started to fade.
I am glad that I had the wood burner that night thanks to the kindness of the girls at work, even if I smelt like a kipper by the end of the night and the inhaled wood smoke has made my cough a wee bit ouchy ever since.
But tonight I did get to watch the whole wedding at long last and loved it all over again. It was lovely sitting there watching the fashion with the girls as Derek was still unimpressed with who was wearing what. Men hey what can you do with them!
I was pleased to see that there were people there like myself who obliviously must have thought that the outfit that they had chosen looked good at home, but wasn't so hot in the cold light of day, but I don't suppose that my outfits were a fraction of how much some of those cost.
Good to see that however much money you have, that you can still cock it up!

I think tonight it will be two paracetamol and an early night with my new book. I have to keep myself in good nick for this Friday's little procedure, which means getting rid of this cough so I can lay down ok through the operation.
Blimey it leaves me cold just thinking of it, but just one step closer to getting a transplant and that is what I have to focus on and keep negative thoughts of what happens if I'm refused, right out of my head.
But the buggers do keep popping up there lately... damn it.

Lots of love Debbie x

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