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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Sunday, 15 May 2011

Round one for me today

Feeling a lot better today, but I didn't think it would be worth the risk of straying too far from the safety of my bathroom, so all weekend plans of going to cinema, food fair and lunch out were put on hold.
I did sleep well and as I knew I wouldn't be expected to take mother out anywhere for lunch today, I did have a nice lie in... that was until I saw a big spider on my bedroom curtains and had to take evasive action.
I was very surprised that my blood pressure and stats weren't more all over the place than they were after I caught the varmint and threw him out the window!
I don't like killing spiders if I can help it, but I am petrified of them and sometimes when I'm knackered and my oxygen lead gets stuck, then I'm afraid there are casualties, but not today.

I am quite pleased with myself that I wasn't totally useless today and managed to restock my plant pots for their new summer look and trim any wayward tendrils of next doors 'Russian Vine,' that reminds me of something from a 'Dr Who' episode, stretching out to grab and strangle you as you walk past to hang out your washing.
I have no idea just how the planters will come out when they bloom, as I started flagging somewhat and just shoved the plants in any old how in the end. Still that's how I do them most years come to think about it and they turn out alright!
I do have to get a couple more boxes from the nursery tomorrow, as I've still three more planters to do yet, but I had run out of plants and energy.

Tonight I even sat and altered the shoulder line on my new maxi dress. Goodness me, I'm a regular little Dobbie the house elf today.
I may have to do quite a bit of altering on my clothes soon, as I am such a weird shape at the moment. I've got very round shoulders and I'm not exactly an eighteen and not exactly a sixteen, just a blob on slim legs really. But I do hate anything feeling tight across my diaphragm or anything that restricts my breathing at all.
A pop up tent would be brilliant really for my shape!

While I sat sewing like the domestic goddess that I am, I was watching the programme 'Secret Millionaire', always guaranteed to make me cry and this was to prove no disappointment.
This episode was about a young Asian heiress and she was so sweet especially when she was taken away from her circle of pretentious rich young friends, but what really stuck in my mind was one of the places she volunteered at, a nursing home for the elderly with dementia.
It was hearing again from the professionals about music bringing the elderly alive, and this group were singing and dancing along to 'We'll meet again' and 'Pack up your troubles' etc as normal.
It struck me, what will they be playing when I'm old and in a home? I can see my sister's generation, she in the 60- 70 bracket, having the 'Beatles' and 'Dusty Springfield' songs being played, but holy shit would I get 'Steps' or the 'Birdie song?'
Kill me now please!
Would look amusing, me in my care home for the criminally insane at 80 (I should wish) still on oxygen dancing to 'Smack my bitch up' or 'Schools Out' in my slippers.
Now there's a thought!

Lots of love Debbie x

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