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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Thursday, 5 May 2011

Coronary angiogram here I come

I now have the most glitzy hallway in the world thanks to my friend Andrew. Ok slight exaggeration, but even my friend Ann, who said it would like a brothel had to concede that it looks good!
Purple and silver is not to every one's taste I admit, especially not Ann's, but I love it and I think it looks pretty damn good, in fact I can't stop going into the hall to admire it.
Linda Barker eat your heart out!

It did me good having Andrew in all day doing the decorating, as I didn't have time to brood about tomorrow. I had to go out and get food shopping in case I can't get out for a while, but didn't want to abandon Andrew, so I came back and chatted to him while he worked.
I also had physio at mine in the afternoon with a pep talk from Hannah about tomorrow and a good luck cuddle.
Also non stop good luck phone calls, then Lynn and Ann called round to see me and we put the world to rights as normal.
Lastly followed by my bath, where once again I presumed the 'Parking the bike' pose with my bum even further up in the air, as this time I had my forearms and boobs in the water to try and keep warm while letting my antibacterial soap do it's stuff. After all it is another chilly night out there.

I do hope that I get the letter from Papworth pretty soon after this procedure, as my two year window is now down to one year and two months, not that I'm counting.
Yes I am slightly anxious, but my specialist did rather give us the impression that it would all happen fairly quickly once the ball started rolling.
And anyway if there wasn't this element of impending doom hanging over my head all the time, then it wouldn't be so bloody breathtakingly and tear jerking, amazing when I do get my new organs.
Anything worth having is worth a struggle to make the victory all the sweeter.
Still, I have my bag packed ready for tomorrow as advised in case they have to admit me overnight for anything. My bag is packed complete with new pjs and new slippers. And I am now hairless below as I couldn't see what I was doing thanks to my stomach being in the way and in a right two and eight, plus I got extremely puffed out trying to contort myself into different positions trying to shave it neatly.
Oh where has that agile woman of two years ago disappeared to?!
So now off to bed for a rather indecently early alarm call.
Wish me luck.

Lots of love Debbie x

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