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I'll be 55 this August... I've had bronchiectasis for ten years plus this year... End stage lung disease for the past year...been on oxygen for three years... and have I got used to it yet?... nah! I am now waiting for the biggie; a double lung and maybe a heart transplant. I love my life weirdly enough, because I have some wonderful family and friends who are with me every step of the way on my adventures, even though I embarrass them on a daily basis with my unorthodox way of looking at life. Not for the faint hearted!

Saturday, 7 May 2011

Head up time

My youngest son made a very conscientious carer last night, although I was a bit concerned when I asked him this morning if he heard me when I got up to spend a penny at 5am and his answer was no.
Could have been a bit worrying if I had have keeled over in the bathroom, but I'm sure he would have heard me eventually.
I did sleep very well, but whether I slept with my leg straight as ordered before leaving the hospital, I sincerely doubt it as you have no control as to how you lay when you are in a deep slumber however many promises you give the nurses.

I did have a shower today which was absolute bliss and I was able to wash away any lingering blood. Julie was there to dry me down, as that has got to be the task that takes it out of me the most. I sat there like a little old lady perched on the edge of the bath while she dried me and added moisturiser to my dry old skin.
I did check my wound site and apart from a couple of pinpricks and the smallest amount of bruising, it looks amazingly well.
So much for the armpit to knee bruising that they said I could end up with. Normally I only have to look at something that I could bump into and I end up with a huge bruise. I get a muscle bound doctor pumping in a length of NHS dynarod into my arteries and zilch.
Not that I want to be bruised, but my body is a mystery to me as my brain is a mystery to everyone else!
I do however feel very tired, but unable to sleep today.
My chest is a little tender and my crotch is itching where my pubic hair has already started to grow back.
I am a bit tender around the entry site, but only if I have been walking around the bungalow a bit too much and however sore your bum gets from sitting with your leg up, it is preferable to the dull ache you get from having it down for too long.
Thank you nurse Julie and nurse Oliver for your care.
I have had a brandy tonight and had my shower, so I can sleep a happy bunny tonight.

Lots of love Debbie x

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